患者新冠负担评估在线工具：开发研究

Online Tool for the Assessment of the Burden of COVID-19 in Patients: Development Study.

作者信息

van Noort Esther M J, Claessens Danny, Moor Catharina C, Berg Carlijn A L Van Den, Kasteleyn Marise J, In 't Veen Johannes C C M, Van Schayck Onno C P, Chavannes Niels H

机构信息

Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands.

Department of Family Medicine, Care and Public Health Research Institute School for Public Health and Primary Care, Maastricht University Medical Centre, Maastricht, Netherlands.

出版信息

JMIR Form Res. 2021 Mar 31;5(3):e22603. doi: 10.2196/22603.

DOI:10.2196/22603

PMID:33729982

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8015936/

Abstract

BACKGROUND

The impact of COVID-19 has been felt worldwide, yet we are still unsure about its full impact. One of the gaps in our current knowledge relates to the long-term mental and physical impact of the infection on affected individuals. The COVID-19 pandemic hit the Netherlands at the end of February 2020, resulting in over 900,000 people testing positive for the virus, over 24,000 hospitalizations, and over 13,000 deaths by the end of January 2021. Although many patients recover from the acute phase of the disease, experience with other virus outbreaks has raised concerns regarding possible late sequelae of the infection.

OBJECTIVE

This study aims to develop an online tool to assess the long-term burden of COVID-19 in patients.

METHODS

In this paper, we describe the process of development, assessment, programming, implementation, and use of this new tool: the assessment of burden of COVID-19 (ABCoV) tool. This new tool is based on the well-validated assessment of burden of chronic obstructive pulmonary disease tool.

RESULTS

As of January 2021, the new ABCoV tool has been used in an online patient platform by more than 2100 self-registered patients and another 400 patients in a hospital setting, resulting in over 2500 patients. These patients have submitted the ABCoV questionnaire 3926 times. Among the self-registered patients who agreed to have their data analyzed (n=1898), the number of females was high (n=1153, 60.7%), many were medically diagnosed with COVID-19 (n=892, 47.0%), and many were relatively young with only 7.4% (n=141) being older than 60 years. Of all patients that actually used the tool (n=1517), almost one-quarter (n=356, 23.5%) used the tool twice, and only a small group (n=76, 5.0%) used the tool 6 times.

CONCLUSIONS

This new ABCoV tool has been broadly and repeatedly used, and may provide insight into the perceived burden of disease, provide direction for personalized aftercare for people post COVID-19, and help us to be prepared for possible future recurrences.

摘要

背景

新型冠状病毒肺炎（COVID-19）的影响已波及全球，但我们仍不确定其全面影响。我们目前知识的空白之一涉及该感染对受影响个体的长期心理和生理影响。COVID-19大流行于2020年2月底袭击荷兰，截至2021年1月底，导致超过90万人病毒检测呈阳性，超过2.4万人住院，超过1.3万人死亡。尽管许多患者从疾病的急性期康复，但其他病毒爆发的经验引发了对该感染可能的晚期后遗症的担忧。

目的

本研究旨在开发一种在线工具，以评估患者中COVID-19的长期负担。

方法

在本文中，我们描述了这种新工具——COVID-19负担评估（ABCoV）工具的开发、评估、编程、实施和使用过程。这种新工具基于经过充分验证的慢性阻塞性肺疾病负担评估工具。

结果

截至2021年1月，新的ABCoV工具已在一个在线患者平台上被2100多名自行注册的患者以及医院环境中的另外400名患者使用，共计超过2500名患者。这些患者已提交ABCoV问卷3926次。在同意对其数据进行分析的自行注册患者中（n = 1898），女性数量较多（n = 1153，60.7%），许多人经医学诊断患有COVID-19（n = 892，47.0%），而且许多人相对年轻，只有7.4%（n = 141）年龄超过60岁。在实际使用该工具的所有患者中（n = 1517），近四分之一（n = 356，23.5%）使用该工具两次，只有一小部分（n = 76，5.0%）使用该工具6次。