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基因组医学知情同意传统方法的局限性。

The limits of traditional approaches to informed consent for genomic medicine.

作者信息

May Thomas, Zusevics Kaija L, Derse Arthur, Strong Kimberly A, Jeruzal Jessica, La Pean Kirschner Alison, Farrell Michael H, Spellecy Ryan

机构信息

Medical College of Wisconsin, Milwaukee, WI, USA,

出版信息

HEC Forum. 2014 Sep;26(3):185-202. doi: 10.1007/s10730-014-9247-3.

Abstract

This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.

摘要

本文认为,新的基因组技术必须认识到传统知情同意方法的局限性,这样基因组信息对他人的影响才能得到恰当的背景化处理,个人权利才能得到尊重。对个人自主性的尊重将越来越需要动态地考虑个人利益和更广泛的社区利益的相互关联维度,以使一方的利益不会损害另一方的根本利益。在这方面,保护个人权利将是个人关切与社区关切之间的复杂互动。

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