1 Old Dominion University, USA.
2 Eastern Virginia Medical School, USA.
J Health Psychol. 2018 Jan;23(1):103-113. doi: 10.1177/1359105316649786. Epub 2016 May 26.
This interview study documented how individuals with sickle cell disease make decisions about who to talk with concerning their illness based on psychological and interpersonal issues that are important to them. Reasons for sickle cell disease disclosure to specific persons were self-related (receiving support, venting feelings), other-related (educating others about sickle cell disease, forewarning others about sickle cell disease-related problems, someone asked for information about the disease), or situational (mostly focusing on another person being physically close or available to talk to). Reasons for sickle cell disease nondisclosure to specific persons were self-related (fear of rejection, being stereotyped, maintaining privacy) or other-related (lack of support, not worrying someone).
这项访谈研究记录了镰状细胞病患者如何基于对他们重要的心理和人际关系问题，就与谁谈论他们的疾病做出决定。向特定人透露镰状细胞病的原因与自身相关（获得支持、发泄情绪）、与他人相关（教育他人了解镰状细胞病、预先警告他人镰状细胞病相关问题、有人询问疾病信息）或与情境相关（主要集中在另一个人身体接近或可交谈）。向特定人隐瞒镰状细胞病的原因与自身相关（害怕被拒绝、被刻板印象化、保护隐私）或与他人相关（缺乏支持、不担心某人）。
