终末期关怀：在患有晚期痴呆症的患者的家庭照顾者中进行预先护理计划的经验 - 一项定性研究。
End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study.
机构信息
Faculty of Education, Health and Community, Liverpool John Moores University, Liverpool, United Kingdom
Evidence-based Practice Research Centre, Faculty of Health & Social Care, Edge Hill University, Ormskirk, United Kingdom.
出版信息
Dementia (London). 2016 Sep;15(5):958-75. doi: 10.1177/1471301214548521. Epub 2014 Sep 3.
BACKGROUND
End of life decisions for people with advanced dementia are reported as often being difficult for families as they attempt to make appropriate and justified decisions.
AIM
To explore the experiences of advance care planning amongst family caregivers of people with advanced dementia.
DESIGN
Qualitative research including a series of single cases (close family relatives).
METHODS
A purposive sample of 12 family caregivers within a specialist dementia unit was interviewed about their experiences of advance care planning between August 2009 and February 2010.
RESULTS/FINDINGS: Family caregivers need encouragement to ask the right questions during advance care planning to discuss the appropriateness of nursing and medical interventions at the end of life.
CONCLUSIONS
Advance care planning can be facilitated with the family caregiver in the context of everyday practice within the nursing home environment for older people with dementia.
背景
有研究报告称，对于晚期痴呆症患者的家属来说，做出适当和合理的临终决策往往非常困难。
目的
探索晚期痴呆症患者家属在预先护理计划方面的经验。
设计
包括一系列单一案例（近亲）的定性研究。
方法
2009 年 8 月至 2010 年 2 月，在一个专门的痴呆症病房中，对 12 名家属照顾者进行了关于预先护理计划经验的访谈。
结果/发现：家属照顾者需要鼓励他们在预先护理计划中提出正确的问题，以讨论在生命末期护理和医疗干预的适当性。
结论
在养老院环境中，可以在日常护理实践的背景下，促进对痴呆老年人的家属照顾者进行预先护理计划。
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