Misterska Ewa, Glowacki Maciej, Adamczyk Katarzyna, Jankowski Roman
Department of Pediatric Orthopaedics and Traumatology, Poznan University of Medical Sciences, 61-545 Poznan, Poland.
Department of Human Development Psychology and Family Studies, Institute of Psychology, Adam Mickiewicz University, 60-568 Poznan, Poland.
J Child Fam Stud. 2014;23(7):1163-1171. doi: 10.1007/s10826-013-9776-4.
The perspective of trunk deformity is a matter of special concern for adolescent idiopathic scoliosis (AIS) patients. No research group has ever reported interviewing patients and their parents regarding differences in perception of body appearance in the course of Cheneau brace treatment. We aimed to investigate the level of agreement in the field of concerns and perceptions of spinal appearance in relation to brace- and scoliosis-related data between parents and female patients with AIS, treated with a Cheneau brace, by means of the Spinal Appearance Questionnaire-pl (SAQ-pl). In this cross-sectional study forty-one pairs of parents and female patients with AIS were asked to separately complete the Polish versions of the Spinal Appearance Questionnaire-pl patient form (SAQ-pl patient form) and the SAQ-pl parent form. Age of patients was 13.60 years SD 1.60 (range 10-17). Patients scored 2.70 ( 0.60) and parents scored 2.70 0.60 in the total score of the SAQ-pl. The study groups do not differ significantly in regards to the SAQ-pl results. The percentage of consistent answers on SAQ-pl items ranges from 34.10 % (item 20) to 78 % (item 8). Height, age and brace-wearing time per day, were significantly related to the differences in the patient-parent General perception of body shape (r = -0.51, r = -0.34, r = 0.36, respectively). Parents and female patients with AIS have similar concerns and perceptions of spinal appearance. The discrepancies in General perception of spinal appearance between parents and AIS females decrease with age of patient. Parental emotional support may contribute to minimizing the risk factors of psychological impairment, especially in late adolescents with AIS.
躯干畸形的观点是青少年特发性脊柱侧凸（AIS）患者特别关注的问题。从未有研究小组报道过就患者及其父母对使用色努支具治疗过程中身体外观的认知差异进行访谈。我们旨在通过脊柱外观问卷-pl（SAQ-pl），调查使用色努支具治疗的AIS女性患者及其父母在与支具和脊柱侧凸相关数据方面，对脊柱外观的关注和认知领域的一致程度。在这项横断面研究中，41对AIS患者及其父母被要求分别填写波兰语版的脊柱外观问卷-pl患者表格（SAQ-pl患者表格）和SAQ-pl家长表格。患者年龄为13.60岁，标准差为1.60（范围10 - 17岁）。在SAQ-pl总分中，患者得分2.70（±0.60），父母得分2.70 ± 0.60。研究组在SAQ-pl结果方面无显著差异。SAQ-pl项目上一致答案的百分比范围从34.10%（项目20）到78%（项目8）。身高、年龄和每日佩戴支具时间与患者 - 父母对身体形状的总体认知差异显著相关（相关系数分别为r = -0.51、r = -0.34、r = 0.36）。AIS女性患者及其父母对脊柱外观有相似的关注和认知。父母与AIS女性在脊柱外观总体认知上的差异随患者年龄增长而减小。父母的情感支持可能有助于降低心理损害的风险因素，尤其是在AIS晚期青少年中。
