Cochran Meagan E, Nelson Katherine R, Robin Nathaniel H
Department of Genetics, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Curr Opin Pediatr. 2014 Dec;26(6):621-5. doi: 10.1097/MOP.0000000000000144.
To summarize the existing literature on the international adoption of children with birth defects and identify areas for further research.
International adoption brings thousands of children to the United States each year, and children with birth defects are overrepresented in this population. Studies have demonstrated disparities in the health of children adopted from different countries as well as the complexity of medical care needed after adoption.
Although the health of children involved in international adoption has been well studied, there is a lack of information about the experiences of the adoptive parents of children with birth defects. We discuss a pilot study conducted on adoptive parents of children with a specific birth defect, orofacial clefting, and discuss areas for future research.
总结关于国际收养出生缺陷儿童的现有文献,并确定进一步研究的领域。
国际收养每年将数千名儿童带到美国,出生缺陷儿童在这一群体中占比过高。研究表明,来自不同国家的被收养儿童的健康状况存在差异,以及收养后所需医疗护理的复杂性。
尽管对参与国际收养儿童的健康状况已有充分研究,但关于出生缺陷儿童养父母经历的信息却很匮乏。我们讨论了一项针对患有特定出生缺陷(唇腭裂)儿童的养父母开展的试点研究,并探讨了未来研究的领域。