印度尼西亚与癌症患儿住院期间日常活动相关的社会文化背景：家长的视角
The Indonesian sociocultural contexts related to daily occupations of children with cancer during hospitalisation: The parents' perspective.
作者信息
Buwana Cahya, Ito Yuko, Brintnell E Sharon
机构信息
Department of Medical Rehabilitation, "Dharmais" National Cancer Center Hospital, Jakarta, Indonesia.
Department of Occupational Therapy, Faculty of Human Health Sciences, Tokyo Metropolitan University, Tokyo, Japan.
出版信息
Br J Occup Ther. 2022 Mar;85(3):172-180. doi: 10.1177/03080226211008716. Epub 2021 Jun 5.
BACKGROUND
The sociocultural phenomenon affecting daily occupations of hospitalised children with cancer in a diverse country like Indonesia is thought-provoking and requires exploration.
OBJECTIVE
This study aims to explore the sociocultural contexts related to daily occupations of children with cancer during hospital admittance from the parents' perspective.
METHODS
Semi-structured interviews were conducted with parents of children with cancer who had been hospitalised for two weeks or more. The data were collected at the paediatric ward of "Dharmais" National Cancer Center Hospital, Jakarta. The study uses interpretative phenomenological analysis (IPA).
RESULTS
Nine parents of children with cancer consented to the study. Three interconnected themes emerged as necessary to the sociocultural context among participants. These involve 'The surrounding human environment as primary encouragement', 'Culture and spirituality as the basic standard' and 'Activity adjustments as new habits'.
CONCLUSIONS
The themes revealed that the daily occupations of hospitalised children with cancer are strongly encouraged by family and social systems in Indonesia, spiritual aspects of the parents and the occupational changes due to the new settings.
背景
在像印度尼西亚这样多元化的国家，影响住院癌症患儿日常活动的社会文化现象发人深省，需要进行探究。
目的
本研究旨在从家长的角度探究与癌症患儿住院期间日常活动相关的社会文化背景。
方法
对住院两周或更长时间的癌症患儿家长进行了半结构式访谈。数据在雅加达“达玛伊斯”国家癌症中心医院的儿科病房收集。本研究采用解释现象学分析（IPA）。
结果
九名癌症患儿家长同意参与本研究。参与者的社会文化背景中出现了三个相互关联的主题。这些主题包括“周围的人文环境是主要激励因素”、“文化和精神是基本标准”以及“活动调整成为新习惯”。
结论
这些主题表明，印度尼西亚的家庭和社会系统、家长的精神层面以及新环境导致的活动变化对住院癌症患儿的日常活动起到了有力的促进作用。
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