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Aust Occup Ther J. 2018 Aug;65(4):329-337. doi: 10.1111/1440-1630.12477. Epub 2018 May 24.
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Still Hoping for a Miracle: Parents' Experiences in Caring for their Child with Cancer Under Palliative Care.仍在期待奇迹：父母在姑息治疗下照顾患癌孩子的经历
Indian J Palliat Care. 2018 Apr-Jun;24(2):127-130. doi: 10.4103/IJPC.IJPC_195_17.
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Health and functioning in the everyday lives of young children with cancer: documenting with the International Classification of Functioning, Disability and Health--Children and Youth (ICF-CY).癌症患儿日常生活中的健康与功能：依据《国际功能、残疾和健康分类——儿童与青少年版》（ICF-CY）进行记录。
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Dealing with symptoms and issues of hospitalized patients with cancer in indonesia: the role of families, nurses, and physicians.印度尼西亚癌症住院患者症状及问题的应对：家庭、护士和医生的作用
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Cultural influences on the survivorship of families affected by childhood cancer: a case for using family systems theories.文化对受儿童癌症影响家庭生存的影响：运用家庭系统理论的理由
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印度尼西亚与癌症患儿住院期间日常活动相关的社会文化背景：家长的视角

The Indonesian sociocultural contexts related to daily occupations of children with cancer during hospitalisation: The parents' perspective.

作者信息

Buwana Cahya, Ito Yuko, Brintnell E Sharon

机构信息

Department of Medical Rehabilitation, "Dharmais" National Cancer Center Hospital, Jakarta, Indonesia.

Department of Occupational Therapy, Faculty of Human Health Sciences, Tokyo Metropolitan University, Tokyo, Japan.

出版信息

Br J Occup Ther. 2022 Mar;85(3):172-180. doi: 10.1177/03080226211008716. Epub 2021 Jun 5.

DOI:10.1177/03080226211008716
PMID:40337078
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12033439/
Abstract

BACKGROUND

The sociocultural phenomenon affecting daily occupations of hospitalised children with cancer in a diverse country like Indonesia is thought-provoking and requires exploration.

OBJECTIVE

This study aims to explore the sociocultural contexts related to daily occupations of children with cancer during hospital admittance from the parents' perspective.

METHODS

Semi-structured interviews were conducted with parents of children with cancer who had been hospitalised for two weeks or more. The data were collected at the paediatric ward of "Dharmais" National Cancer Center Hospital, Jakarta. The study uses interpretative phenomenological analysis (IPA).

RESULTS

Nine parents of children with cancer consented to the study. Three interconnected themes emerged as necessary to the sociocultural context among participants. These involve 'The surrounding human environment as primary encouragement', 'Culture and spirituality as the basic standard' and 'Activity adjustments as new habits'.

CONCLUSIONS

The themes revealed that the daily occupations of hospitalised children with cancer are strongly encouraged by family and social systems in Indonesia, spiritual aspects of the parents and the occupational changes due to the new settings.

摘要

背景

在像印度尼西亚这样多元化的国家，影响住院癌症患儿日常活动的社会文化现象发人深省，需要进行探究。

目的

本研究旨在从家长的角度探究与癌症患儿住院期间日常活动相关的社会文化背景。

方法

对住院两周或更长时间的癌症患儿家长进行了半结构式访谈。数据在雅加达“达玛伊斯”国家癌症中心医院的儿科病房收集。本研究采用解释现象学分析（IPA）。

结果

九名癌症患儿家长同意参与本研究。参与者的社会文化背景中出现了三个相互关联的主题。这些主题包括“周围的人文环境是主要激励因素”、“文化和精神是基本标准”以及“活动调整成为新习惯”。

结论

这些主题表明，印度尼西亚的家庭和社会系统、家长的精神层面以及新环境导致的活动变化对住院癌症患儿的日常活动起到了有力的促进作用。