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癌症患者确诊后日常活动的变化:加拿大和伊朗患者如何看待这些变化?

Changes in daily activities of cancer patients after diagnosis: how do canadian and Iranian patients perceive the change?

作者信息

Shahidi Javad, Taghizadeh-Kermani Ali, Gohari Mahmood Reza, Ghavamnasiri Mohammad Reza, Khoshroo Fahimeh, Pourali Leila, Cohen S Robin

机构信息

Division of Experimental Medicine, McGill University, Montreal, QC, Canada.

Surgical Oncology Research Center, Imam Reza Hospital, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran ; Cancer Research Center, Mashhad University of Medical Sciences, Mashhad, Iran.

出版信息

Iran J Cancer Prev. 2014 Winter;7(1):28-34.

Abstract

BACKGROUND

Being diagnosed with cancer has major impacts on a patient's life. This study was conducted to explore how specific daily activities of patients change as a result of cancer diagnosis or its treatment and how these patients feel about such changes.

METHODS

This was a cross-sectional descriptive study. Cancer patients referred to our clinics and by completing a questionnaire, they reported their daily activities and how they changed after diagnosis. A total of 201 patients in Canada and 167 patients in Iran completed the questionnaire. The research setting was the outpatient cancer clinics of the Jewish General Hospital in Montreal, Canada (February to April 2008) and Imam Reza Hospital and Ghaem Hospital in Mashhad, Iran (March to August 2008).

RESULTS

More than 40 percent of the patients reported changes after the diagnosis in at least 8 out of 22 daily activities listed in the questionnaire. While a negative perception towards the changes was more common, some patients also perceived some changes as positive. More than half of the participants (56.9%) who were employed at the time of diagnosis experienced changes in the amount or type of their paid work after being diagnosed with cancer.

CONCLUSION

The impact of a cancer diagnosis and treatment on a patient's daily activities is drastic. There is a need to provide support and interventions to help patients maintain daily activities they need and/or like. Further studies are needed to better understand the nature of such interventions.

摘要

背景

被诊断患有癌症会对患者的生活产生重大影响。本研究旨在探讨癌症诊断或其治疗如何导致患者的特定日常活动发生变化,以及这些患者对这些变化的感受。

方法

这是一项横断面描述性研究。转诊至我们诊所的癌症患者通过填写问卷,报告他们的日常活动以及诊断后这些活动的变化情况。加拿大共有201名患者和伊朗的167名患者完成了问卷。研究地点为加拿大蒙特利尔犹太总医院的门诊癌症诊所(2008年2月至4月)以及伊朗马什哈德的伊玛目礼萨医院和加姆医院(2008年3月至8月)。

结果

超过40%的患者报告在问卷列出的22项日常活动中,至少有8项在诊断后发生了变化。虽然对这些变化持负面看法更为常见,但一些患者也认为某些变化是积极的。超过一半(56.9%)在诊断时受雇的参与者在被诊断患有癌症后,其有偿工作的数量或类型发生了变化。

结论

癌症诊断和治疗对患者日常活动的影响是巨大的。需要提供支持和干预措施,以帮助患者维持他们需要和/或喜欢的日常活动。需要进一步研究以更好地了解此类干预措施的性质。

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