Lobchuk Michelle, McClement Susan, Rigney Maureen, Copeland Amy, Bayrampour Hamideh
Author Affiliations: College of Nursing, Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada (Drs Lobchuk and McClement); Lung Cancer Alliance, Washington, DC (Mss Rigney and Copeland); and Faculty of Medicine, University of Calgary, Alberta, Canada (Dr Bayrampour).
Cancer Nurs. 2015 Sep-Oct;38(5):E21-31. doi: 10.1097/NCC.0000000000000207.
Online support communities are popular in use by patients with cancer and their families for emotional, informational, and social support. Nonetheless, most research has focused on diagnoses other than lung cancer, indicating a need for studies to include more diverse participants and cancer conditions.
Our aim was to describe the content of messages in a United States-based online support community for lung cancer.
A descriptive exploratory qualitative approach was used to analyze a sample of 688 pages with threaded messages across 2 time periods in 2008 and 2009. We analyzed 68 main posts and 586 replies in 344 pages for period 1 (262 users), and 55 main posts and 697 replies in 344 pages for period 2 (307 users).
Most users were female and equally divided as patients or support persons. Content analysis generated 9 themes: disease information, diagnostic test information, treatment information, symptoms, marked deterioration, advocacy, experiencing healthcare providers and the system, positive survivorship, and making sense of emotions.
Findings highlighted how the online support community is a valued, accessible avenue for information exchange and nonjudgmental emotional support for individuals dealing with lung cancer.
Findings of daily living needs as articulated in this online community serve as a valuable guide for nurses to: better understand support needs, participate in developing and evaluating effective Internet and educational supports, and be better informed as advocates for more resources for Internet support mechanisms for people dealing with stigmatized conditions such as lung cancer.
在线支持社区在癌症患者及其家属中广泛使用，以提供情感、信息和社交支持。尽管如此，大多数研究都集中在肺癌以外的诊断上，这表明需要开展更多研究，纳入更多样化的参与者和癌症类型。
我们的目的是描述一个美国肺癌在线支持社区中的信息内容。
采用描述性探索性定性方法，分析2008年和2009年两个时间段内688页带线程信息的样本。我们分析了第一阶段344页中的68个主帖和586条回复（262名用户），以及第二阶段344页中的55个主帖和697条回复（307名用户）。
大多数用户为女性，患者和支持者人数均等。内容分析产生了9个主题：疾病信息、诊断测试信息、治疗信息、症状、病情显著恶化、维权、就医体验及医疗系统、积极的生存状态、理解情绪。
研究结果突出表明，在线支持社区是一个有价值且易于获取的途径，可为肺癌患者提供信息交流和无偏见的情感支持。
该在线社区所阐明的日常生活需求调查结果，对护士而言是一份宝贵的指南，有助于护士更好地了解支持需求，参与开发和评估有效的互联网及教育支持方式，并作为倡导者，更充分地了解为应对肺癌等受歧视疾病的人群提供互联网支持机制所需的更多资源。
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