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为什么癌症患者和康复者使用互联网。

Why People Living With and Beyond Cancer Use the Internet.

机构信息

1 University of Southampton, Southampton, UK.

出版信息

Integr Cancer Ther. 2019 Jan-Dec;18:1534735419829830. doi: 10.1177/1534735419829830.

DOI:10.1177/1534735419829830
PMID:30741026
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6432669/
Abstract

People living with and beyond cancer suffer with a wide range of physical and psychological symptoms. To manage the challenges associated with cancer, patients use a variety of self-management resources, including the Internet. People living with and beyond cancer use the Internet to make decisions regarding their self-care, through information provision, online communities, and support groups. Using the Internet may empower patients, enabling them to feel they have the required knowledge to discuss complementary and alternative treatment options with their health care team. Patients use the Internet because of its practicality; however, there are also several barriers affecting patients with cancer using the Internet, such as lack of information technology skills, lack of computer access, and concerns over the quality of information. Health care professionals need to be aware that the information available on the Internet plays a factor in the decision-making processes regarding using complementary and alternative medicine for self-management. With the use of the Internet as a tool for self-management continuing to grow, it is recommended that more emphasis is placed on health care professionals discussing the role the Internet plays in the decision-making process, to further support their patients regarding self-management for living with and beyond cancer.

摘要

患有癌症及癌症康复者会经历各种身体和心理症状。为了应对与癌症相关的挑战,患者会使用各种自我管理资源,包括互联网。患有癌症及癌症康复者会利用互联网来获取自我护理方面的信息,例如信息提供、在线社区和支持小组,从而做出相关决策。使用互联网可以增强患者的能力,使他们感到有必要的知识来与他们的医疗团队讨论补充和替代治疗方案。患者使用互联网是因为它的实用性;但是,也有一些障碍会影响癌症患者使用互联网,例如缺乏信息技术技能、缺乏计算机访问权限以及对信息质量的担忧。医疗保健专业人员需要意识到互联网上提供的信息会影响关于使用补充和替代医学进行自我管理的决策过程。随着互联网作为自我管理工具的使用继续增长,建议更多地强调医疗保健专业人员讨论互联网在决策过程中所扮演的角色,以进一步支持他们的患者进行癌症康复后的自我管理。

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