家庭在专业日间护理机构与服务方共同分担照顾痴呆症患者的经历。
The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units.
作者信息
Gústafsdóttir Margrét
机构信息
Faculty of Nursing, University of Iceland, Reykjavík, Iceland.
出版信息
Dement Geriatr Cogn Dis Extra. 2014 Sep 11;4(3):344-54. doi: 10.1159/000358823. eCollection 2014 Sep.
Abstract
BACKGROUND
Services in specialized day-care units for individuals with dementia are set up to enable these persons to live in their own home. The purpose of this paper is to discern the experiences of families with these services while caring for a close relative with dementia.
METHOD
Longitudinal interviews with 8 family members were conducted. In total, 25 interviews were carried out over a period of 5 years.
RESULTS
The experience of these families of looking after a close person with dementia appeared to be influenced by (a) the multifaceted meaning of ties, (b) the perception of purposeful relief of the day-care services and (c) the progress of the disease.
CONCLUSION
All families found the services of specialized day-care units both useful and pleasant. This kind of resource was shown to make everyday life much more manageable for all persons involved, most importantly for the patient with dementia.
摘要
背景
为痴呆症患者设立的专门日间护理机构的服务旨在使这些人能够居家生活。本文旨在了解家庭在照顾患有痴呆症的近亲时对这些服务的体验。
方法
对8名家庭成员进行了纵向访谈。在5年的时间里共进行了25次访谈。
结果
这些家庭照顾患有痴呆症的近亲的体验似乎受到以下因素的影响：（a）关系的多方面意义；（b）对日间护理服务有目的的缓解作用的认知；（c）疾病的进展。
结论
所有家庭都认为专门日间护理机构的服务既有用又令人满意。事实表明，这种资源能让所有相关人员的日常生活更易于管理，对痴呆症患者尤为重要。
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