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比较围生期咨询中各专业的新生儿发病率和死亡率估计值。

Comparing neonatal morbidity and mortality estimates across specialty in periviable counseling.

作者信息

Tucker Edmonds Brownsyne, McKenzie Fatima, Panoch Janet E, Frankel Richard M

机构信息

a Department of Obstetrics and Gynecology , Indiana University School of Medicine , Indianapolis , IN , USA .

b Mary Margaret Walther Center for Research and Education in Palliative Care, IU Simon Cancer Center , Indianapolis , IN , USA .

出版信息

J Matern Fetal Neonatal Med. 2015;28(18):2145-9. doi: 10.3109/14767058.2014.981807. Epub 2014 Nov 14.

Abstract

OBJECTIVE

To describe and compare estimates of neonatal morbidity and mortality communicated by neonatologists and obstetricians in simulated periviable counseling encounters.

METHODS

A simulation-based study of 16 obstetricians (OBs) and 15 neonatologists counseling standardized patients portraying pregnant women with ruptured membranes at 23 weeks gestation. Two investigators tabulated all instances of numerically-described risk estimates across individuals and by specialty.

RESULTS

Overall, 12/15 (80%) neonatologists utilized numeric estimates of survival; 6/16 (38%) OBs did. OBs frequently deferred the discussion of "exact numbers" to neonatologists. The 12 neonatologists provided 13 unique numeric estimates, ranging from 3% to 50% survival. Half of those neonatologists provided two to three different estimates in a single encounter. By comparison, six OBs provided four unique survival estimates ("50%", "30-40%", "1/3-1/2", "<10%"). Only 2/15 (13%) neonatologists provided numeric estimates of survival without impairment. None of the neonatologists used the term "intact" survival, while five OBs did. Three neonatologists gave numeric estimates of long-term disability and one OB did.

CONCLUSION

We found substantial variation in estimates and noteworthy omissions of discussions related to long-term morbidity. Across specialties, we noted inconsistencies in the use and meaning of terms like "intact survival." More tools and training are needed to improve the quality and consistency of periviable risk-communication.

摘要

目的

描述并比较新生儿科医生和产科医生在模拟的近可存活期咨询过程中传达的新生儿发病率和死亡率估计值。

方法

一项基于模拟的研究,16名产科医生(OBs)和15名新生儿科医生为标准化患者提供咨询,这些患者模拟的是妊娠23周胎膜破裂的孕妇。两名研究人员将所有以数字描述的风险估计实例按个体和专业进行列表统计。

结果

总体而言,15名新生儿科医生中有12名(80%)使用了生存的数字估计值;16名产科医生中有6名(38%)使用了。产科医生经常将“确切数字”的讨论推迟给新生儿科医生。12名新生儿科医生提供了13个独特的数字估计值,生存概率从3%到50%不等。其中一半的新生儿科医生在单次咨询中提供了两到三个不同的估计值。相比之下,6名产科医生提供了4个独特的生存估计值(“50%”、“30 - 40%”、“1/3 - 1/2”、“<10%”)。只有2/15(13%)的新生儿科医生提供了无损伤生存概率的数字估计值。没有新生儿科医生使用“完整”生存这个术语,而5名产科医生使用了。3名新生儿科医生给出了长期残疾的数字估计值,1名产科医生给出了。

结论

我们发现估计值存在很大差异,并且在与长期发病率相关的讨论中存在值得注意的遗漏。在不同专业之间,我们注意到“完整生存”等术语的使用和含义存在不一致。需要更多的工具和培训来提高近可存活期风险沟通的质量和一致性。

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