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本文引用的文献

1
Prediction of neonatal outcomes in extremely preterm neonates.预测极早产儿的新生儿结局。
Pediatrics. 2013 Oct;132(4):e876-85. doi: 10.1542/peds.2013-0702. Epub 2013 Sep 23.
2
Neurodevelopmental outcomes at 4 to 8 years of children born at 22 to 25 weeks' gestational age: a meta-analysis.22 至 25 孕周出生的儿童在 4 至 8 岁时的神经发育结局:一项荟萃分析。
JAMA Pediatr. 2013 Oct;167(10):967-74. doi: 10.1001/jamapediatrics.2013.2395.
3
Individual and center-level factors affecting mortality among extremely low birth weight infants.影响极低出生体重儿死亡率的个体和中心水平因素。
Pediatrics. 2013 Jul;132(1):e175-84. doi: 10.1542/peds.2012-3707. Epub 2013 Jun 10.
4
Short term outcomes after extreme preterm birth in England: comparison of two birth cohorts in 1995 and 2006 (the EPICure studies).英格兰极早产婴儿的短期预后:1995 年和 2006 年两个出生队列的比较(EPICure 研究)。
BMJ. 2012 Dec 4;345:e7976. doi: 10.1136/bmj.e7976.
5
"This is a decision you have to make": using simulation to study prenatal counseling.“这是你必须做出的决定”:使用模拟来研究产前咨询。
Simul Healthc. 2012 Aug;7(4):207-12. doi: 10.1097/SIH.0b013e318256666a.
6
Association of antenatal corticosteroids with mortality and neurodevelopmental outcomes among infants born at 22 to 25 weeks' gestation.产前皮质类固醇与 22 至 25 孕周出生婴儿的死亡率和神经发育结局的关系。
JAMA. 2011 Dec 7;306(21):2348-58. doi: 10.1001/jama.2011.1752.
7
Development and pretesting of a decision-aid to use when counseling parents facing imminent extreme premature delivery.当面临即将早产的极端情况时,为父母提供咨询的决策辅助工具的开发和预测试。
J Pediatr. 2012 Mar;160(3):382-7. doi: 10.1016/j.jpeds.2011.08.070. Epub 2011 Nov 1.
8
A randomized trial of the effect of patient race on physicians' intensive care unit and life-sustaining treatment decisions for an acutely unstable elder with end-stage cancer.一项关于患者种族对医生在重症监护病房和生命支持治疗决策的影响的随机试验,对象是一位患有晚期癌症的急性不稳定老年患者。
Crit Care Med. 2011 Jul;39(7):1663-9. doi: 10.1097/CCM.0b013e3182186e98.
9
Educational outcomes in extremely preterm children: neuropsychological correlates and predictors of attainment.极早产儿的教育成果:神经心理学关联及成就的预测因素
Dev Neuropsychol. 2011;36(1):74-95. doi: 10.1080/87565641.2011.540541.
10
Providing advice to parents for women at acutely high risk of periviable delivery.为极早产风险的孕妇的家长提供建议。
Obstet Gynecol. 2010 May;115(5):904-909. doi: 10.1097/AOG.0b013e3181da93a7.

比较围生期咨询中各专业的新生儿发病率和死亡率估计值。

Comparing neonatal morbidity and mortality estimates across specialty in periviable counseling.

作者信息

Tucker Edmonds Brownsyne, McKenzie Fatima, Panoch Janet E, Frankel Richard M

机构信息

a Department of Obstetrics and Gynecology , Indiana University School of Medicine , Indianapolis , IN , USA .

b Mary Margaret Walther Center for Research and Education in Palliative Care, IU Simon Cancer Center , Indianapolis , IN , USA .

出版信息

J Matern Fetal Neonatal Med. 2015;28(18):2145-9. doi: 10.3109/14767058.2014.981807. Epub 2014 Nov 14.

DOI:10.3109/14767058.2014.981807
PMID:25354284
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4431952/
Abstract

OBJECTIVE

To describe and compare estimates of neonatal morbidity and mortality communicated by neonatologists and obstetricians in simulated periviable counseling encounters.

METHODS

A simulation-based study of 16 obstetricians (OBs) and 15 neonatologists counseling standardized patients portraying pregnant women with ruptured membranes at 23 weeks gestation. Two investigators tabulated all instances of numerically-described risk estimates across individuals and by specialty.

RESULTS

Overall, 12/15 (80%) neonatologists utilized numeric estimates of survival; 6/16 (38%) OBs did. OBs frequently deferred the discussion of "exact numbers" to neonatologists. The 12 neonatologists provided 13 unique numeric estimates, ranging from 3% to 50% survival. Half of those neonatologists provided two to three different estimates in a single encounter. By comparison, six OBs provided four unique survival estimates ("50%", "30-40%", "1/3-1/2", "<10%"). Only 2/15 (13%) neonatologists provided numeric estimates of survival without impairment. None of the neonatologists used the term "intact" survival, while five OBs did. Three neonatologists gave numeric estimates of long-term disability and one OB did.

CONCLUSION

We found substantial variation in estimates and noteworthy omissions of discussions related to long-term morbidity. Across specialties, we noted inconsistencies in the use and meaning of terms like "intact survival." More tools and training are needed to improve the quality and consistency of periviable risk-communication.

摘要

目的

描述并比较新生儿科医生和产科医生在模拟的近可存活期咨询过程中传达的新生儿发病率和死亡率估计值。

方法

一项基于模拟的研究,16名产科医生(OBs)和15名新生儿科医生为标准化患者提供咨询,这些患者模拟的是妊娠23周胎膜破裂的孕妇。两名研究人员将所有以数字描述的风险估计实例按个体和专业进行列表统计。

结果

总体而言,15名新生儿科医生中有12名(80%)使用了生存的数字估计值;16名产科医生中有6名(38%)使用了。产科医生经常将“确切数字”的讨论推迟给新生儿科医生。12名新生儿科医生提供了13个独特的数字估计值,生存概率从3%到50%不等。其中一半的新生儿科医生在单次咨询中提供了两到三个不同的估计值。相比之下,6名产科医生提供了4个独特的生存估计值(“50%”、“30 - 40%”、“1/3 - 1/2”、“<10%”)。只有2/15(13%)的新生儿科医生提供了无损伤生存概率的数字估计值。没有新生儿科医生使用“完整”生存这个术语,而5名产科医生使用了。3名新生儿科医生给出了长期残疾的数字估计值,1名产科医生给出了。

结论

我们发现估计值存在很大差异,并且在与长期发病率相关的讨论中存在值得注意的遗漏。在不同专业之间,我们注意到“完整生存”等术语的使用和含义存在不一致。需要更多的工具和培训来提高近可存活期风险沟通的质量和一致性。