Stokes Laura, Combes Helen, Stokes Graham
Department of Psychology, Keele University, Keele, UK.
SUSTAIN, North Staffordshire Combined Healthcare Trust, Newcastle-under-Lyme, UK.
Psychogeriatrics. 2015 Sep;15(3):218-25. doi: 10.1111/psyg.12095. Epub 2014 Dec 16.
This review examines how people understand and make sense of a dementia diagnosis. The review explores how lay frameworks and information presented at diagnosis may inform a caregiver's understanding of dementia in a family member. Existing qualitative research exploring how caregivers understand and make sense of dementia is reviewed. A literature search was conducted, and the results indicated that family carers often receive little or unclear information about dementia, with diagnostic information often delivered in euphemistic terms. Lack of clarity regarding diagnosis and prognosis creates uncertainty for caregivers and impacts future care planning. Caregiver's understandings of the condition vary, with some symptoms often not attributed to the condition. The literature highlights significant gaps and misconceptions in public knowledge regarding dementia, which raises questions about how family caregivers understand the condition. Further research is required to explore how information is presented to family carers at the time of diagnosis and how this is used to understand the condition.
本综述探讨了人们如何理解和认识痴呆症诊断。该综述探究了一般框架以及诊断时所提供的信息如何影响照料者对其家庭成员患痴呆症的理解。对现有的关于照料者如何理解和认识痴呆症的定性研究进行了综述。进行了文献检索，结果表明家庭照料者通常很少收到或收到不明确的有关痴呆症的信息，诊断信息往往是用委婉的措辞传达的。诊断和预后的不明确给照料者带来了不确定性，并影响未来的护理计划。照料者对病情的理解各不相同，有些症状往往未被归因于该病。文献强调了公众对痴呆症认识方面存在的重大差距和误解，这引发了关于家庭照料者如何理解该病的问题。需要进一步研究以探讨在诊断时如何向家庭照料者提供信息，以及这是如何被用于理解病情的。
