Kobayashi Kyoko, Hayakawa Akira, Hohashi Naohiro
St. Luke's International University, Tokyo, Japan
Kobe University, Kobe, Japan.
J Fam Nurs. 2015 Feb;21(1):119-48. doi: 10.1177/1074840714564061. Epub 2014 Dec 23.
Having a child diagnosed with cancer is a stressful event for the family. This exploratory multimethod study utilized both quantitative and qualitative multiinformant methodologies to investigate the relationships between parental family functioning and siblings' health-related quality of life (HRQOL) and to describe interrelations between the experiences of parents and siblings of children with childhood cancer. A total of 14 Japanese families participated in the quantitative study, and 4 families of the 14 participated in the qualitative study. In-depth, semistructured interviews revealed three family-unit stages during the time course of the ill child's treatment that included particular parent-sibling interrelations. We also found strong correlation between parental family functioning and siblings' HRQOL in the quantitative study. The results suggest the importance of family nursing interventions directed to individual family members and the family unit that focus on strengthening the parent-sibling relationship and supporting families who are experiencing childhood cancer.
孩子被诊断出患有癌症,这对整个家庭来说是一个压力巨大的事件。这项探索性的多方法研究运用了定量和定性的多信息提供者方法,来调查父母的家庭功能与兄弟姐妹的健康相关生活质量(HRQOL)之间的关系,并描述患有儿童癌症的孩子的父母与兄弟姐妹经历之间的相互关系。共有14个日本家庭参与了定量研究,其中4个家庭参与了定性研究。深入的半结构化访谈揭示了患病儿童治疗期间家庭单元的三个阶段,其中包括特定的亲子关系。我们还在定量研究中发现父母的家庭功能与兄弟姐妹的健康相关生活质量之间存在很强的相关性。结果表明,针对个体家庭成员和家庭单元的家庭护理干预措施很重要,这些干预措施侧重于加强亲子关系,并为经历儿童癌症的家庭提供支持。