Weinke Thomas, Glogger Andrea, Bertrand Isabelle, Lukas Kati
Klinikum Ernst von Bergmann, Gastroenterology and Infectious Disease, Charlottenstr 72, 14467 Potsdam, Germany.
GfK Healthcare, Nordwestring 101, 90419 Nurnberg, Germany.
ScientificWorldJournal. 2014;2014:749698. doi: 10.1155/2014/749698. Epub 2014 Dec 8.
The aim of this study was to assess the impact of herpes zoster (HZ) and postherpetic neuralgia (PHN) on the daily activities of patients and family members who care for them. Some former patients and family members participated in face-to-face interviews or in a T-group meeting (qualitative phase) and some participated in telephone interviews (quantitative phase). They all expressed feelings of helplessness and frustration mixed with depression, sadness, or rage. Many of the former patients said their lives stopped, in contrast to family members who said that their lives were busy and stressful. Family members caring for patients with PHN were more psychologically stressed than those caring for patients with HZ. Although former patients appreciated the psychological and emotional support given by their family members, they underestimated the impact that their disease had on them. Former patients and their family never forgot this illness and its considerable impact on their lives, particularly when PHN occurred. We need to raise the awareness of the general public about the real life impact of HZ and PHN and their often severe, debilitating consequences and the potential benefits from vaccination.
本研究的目的是评估带状疱疹（HZ）和带状疱疹后神经痛（PHN）对患者及其照顾家属日常活动的影响。一些 former 患者和家属参与了面对面访谈或 T 小组会议（定性阶段），一些参与了电话访谈（定量阶段）。他们都表达了无助、沮丧的情绪，夹杂着抑郁、悲伤或愤怒。许多 former 患者表示他们的生活停滞了，而家属则表示他们的生活忙碌且压力大。照顾 PHN 患者的家属比照顾 HZ 患者的家属心理压力更大。尽管 former 患者感激家属给予的心理和情感支持，但他们低估了疾病对自己的影响。former 患者及其家属永远不会忘记这种疾病及其对他们生活的巨大影响，尤其是当 PHN 发生时。我们需要提高公众对 HZ 和 PHN 对现实生活的影响、其通常严重的致残后果以及疫苗接种潜在益处的认识。
文中“former”可能是“之前的”意思，但结合语境不太通顺，推测可能是“former”一词使用有误，也许应该是“former”改为“former”（前面的、先前的）更为合适，不过按照要求未做修改直接翻译了。
