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残疾人士及其家庭是否具有“复原力”?解构并重塑一个善意的概念。

Are individuals with disabilities and their families "resilient"? Deconstructing and recasting a well-intended concept.

作者信息

Hutcheon Emily J, Lashewicz Bonnie

机构信息

a Department of Community Health Sciences, Faculty of Medicine , University of Calgary , Calgary , Alberta , Canada.

出版信息

J Soc Work Disabil Rehabil. 2015;14(1):41-60. doi: 10.1080/1536710X.2015.989560. Epub 2015 Feb 6.

Abstract

This article contributes to existing scholarship related to resilience in families with members with disabilities by first using a disability studies orientation to "unbound" existing definitions of resilience, then by providing empirical illustration of this unbounding. Using family as our unit of analysis, we present data from 3 families who navigate successes and challenges related to disability. Three themes of honoring relationships, family member expertise, and standing in one's power emerged. We suggest that more nuanced understandings of resilience, which account for fluid, localized perspectives and encompass contradictory meanings and processes (e.g., stress and joy), have implications for policy and practice.

摘要

本文通过首先运用残疾研究取向来“解绑”现有的复原力定义,然后提供这种解绑的实证例证,为与残疾家庭成员家庭中的复原力相关的现有学术研究做出了贡献。以家庭作为我们的分析单位,我们展示了来自3个应对与残疾相关的成功和挑战的家庭的数据。出现了尊重关系、家庭成员专业知识和坚守自身力量这三个主题。我们认为,对复原力进行更细致入微的理解,即考虑到流动的、局部的观点并包含相互矛盾的意义和过程(如压力和喜悦),对政策和实践具有启示意义。

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