Munhoz Bruna Antenussi, Paiva Henrique Soares, Abdalla Beatrice Martinez Zugaib, Zaremba Guilherme, Rodrigues Andressa Macedo Paiva, Carretti Mayra Ribeiro, Monteiro Camila Ribeiro de Arruda, Zara Aline, Silva Jussara Oliveira, Assis Widner Baptista, Auresco Luciana Campi, Pereira Leonardo Lopes, Giglio Adriana Braz Del, Lepori Ana Claudia de Oliveira, Trufelli Damila Cristina, del Giglio Auro
Faculdade de Medicina do ABC, Santo André, SP, Brazil.
Einstein (Sao Paulo). 2014 Oct-Dec;12(4):485-91. doi: 10.1590/S1679-45082014RC3091. Epub 2014 Dec 16.
To evaluate the perception of oncology patients and their caregivers upon diagnosis and beginning of the therapy and during palliative care.
A cross-sectional study at the oncology and palliative care outpatients clinics of the Faculdade de Medicina do ABC. Clinical and demographic data from patients and their caregivers were collected and questionnaires regarding the elements considered important in relation to the treatment were applied.
We enrolled 32 patients and 23 caregivers that were initiating treatment at the oncology outpatient clinic, as well as 20 patients and 20 caregivers at the palliative care clinic. Regarding the patients treated at the oncology clinic, the issues considered most important were a physician available to discuss the disease and answer questions (84%), trust in the physician (81%), and a physician with accessible language (81%). For their caregivers, the following issues were considered extremely important: trust in the medical team that treats the patients (96%), and the same medical team taking care of their relatives (87%). As to patients treated at the palliative care clinic, trust in the physician (83%), to be with people considered important to them (78%), and to be treated preserving their dignity (72%) were considered extremely important. For their caregivers, to receive adequate information about the disease and the treatment's risks and benefits (84%), and sincere communication of information about the disease (79%) were considered extremely relevant.
Confidence through good communication and consistency in care were fundamental values to achieve satisfaction among caregivers and patients with cancer during all the course of disease development.
评估肿瘤患者及其照护者在诊断、治疗开始时以及姑息治疗期间的感受。
在ABC医学院肿瘤与姑息治疗门诊进行一项横断面研究。收集患者及其照护者的临床和人口统计学数据，并应用关于治疗中重要因素的问卷。
我们纳入了32例在肿瘤门诊开始治疗的患者和23名照护者，以及20例在姑息治疗门诊的患者和20名照护者。对于在肿瘤门诊接受治疗的患者，认为最重要的问题是有医生可讨论病情并回答问题（84%）、对医生的信任（81%）以及语言易懂的医生（81%）。对于他们的照护者，以下问题被认为极其重要：对治疗患者的医疗团队的信任（96%），以及同一医疗团队照顾其亲属（87%）。至于在姑息治疗门诊接受治疗的患者，对医生的信任（83%）、与对他们重要的人在一起（78%）以及在治疗中保持尊严（72%）被认为极其重要。对于他们的照护者，获得关于疾病以及治疗风险和益处的充分信息（84%），以及关于疾病信息的真诚沟通（79%）被认为极其相关。
在疾病发展的整个过程中，通过良好沟通和护理的一致性建立信任是使癌症患者及其照护者获得满意度的基本价值观。
