Stellefson Michael, Chaney Beth, Chaney Don, Paige Samantha, Payne-Purvis Caroline, Tennant Bethany, Walsh-Childers Kim, Sriram Ps, Alber Julia
Center for Digital Health and Wellness, Department of Health Education and Behavior, University of Florida, Gainesville, FL, United States.
JMIR Res Protoc. 2015 Jan 28;4(1):e17. doi: 10.2196/resprot.3959.
Patients with chronic obstructive pulmonary disease (COPD) often report inadequate access to comprehensive patient education resources.
The purpose of this study was to incorporate community-engagement principles within a mixed-method research design to evaluate the usability and acceptability of a self-tailored social media resource center for medically underserved patients with COPD.
A multiphase sequential design (qual → QUANT → quant + QUAL) was incorporated into the current study, whereby a small-scale qualitative (qual) study informed the design of a social media website prototype that was tested with patients during a computer-based usability study (QUANT). To identify usability violations and determine whether or not patients found the website prototype acceptable for use, each patient was asked to complete an 18-item website usability and acceptability questionnaire, as well as a retrospective, in-depth, semistructured interview (quant + QUAL).
The majority of medically underserved patients with COPD (n=8, mean 56 years, SD 7) found the social media website prototype to be easy to navigate and relevant to their self-management information needs. Mean responses on the 18-item website usability and acceptability questionnaire were very high on a scale of 1 (strongly disagree) to 5 (strongly agree) (mean 4.72, SD 0.33). However, the majority of patients identified several usability violations related to the prototype's information design, interactive capabilities, and navigational structure. Specifically, 6 out of 8 (75%) patients struggled to create a log-in account to access the prototype, and 7 out of 8 patients (88%) experienced difficulty posting and replying to comments on an interactive discussion forum.
Patient perceptions of most social media website prototype features (eg, clickable picture-based screenshots of videos, comment tools) were largely positive. Mixed-method stakeholder feedback was used to make design recommendations, categorize usability violations, and prioritize potential solutions for improving the usability of a social media resource center for COPD patient education.
慢性阻塞性肺疾病（COPD）患者常表示难以获取全面的患者教育资源。
本研究旨在将社区参与原则纳入混合方法研究设计，以评估为医疗服务不足的COPD患者量身定制的社交媒体资源中心的可用性和可接受性。
本研究采用多阶段序列设计（定性→定量→定量+定性），即通过小规模定性研究为社交媒体网站原型的设计提供信息，该原型在基于计算机的可用性研究中对患者进行测试（定量）。为了识别可用性问题并确定患者是否认为网站原型可接受使用，要求每位患者完成一份包含18个项目的网站可用性和可接受性问卷，以及一次回顾性、深入的半结构化访谈（定量+定性）。
大多数医疗服务不足的COPD患者（n = 8，平均年龄56岁，标准差7）认为社交媒体网站原型易于导航，且与他们的自我管理信息需求相关。在1（强烈不同意）至5（强烈同意）的量表上，18项网站可用性和可接受性问卷的平均得分非常高（平均4.72，标准差0.33）。然而，大多数患者指出了与原型的信息设计、交互功能和导航结构相关的几个可用性问题。具体而言，8名患者中有6名（75%）在创建登录账户以访问原型时遇到困难，8名患者中有7名（88%）在交互式讨论论坛上发布和回复评论时遇到困难。
患者对大多数社交媒体网站原型功能（如视频的可点击图片截图、评论工具）的看法大多是积极的。采用混合方法收集利益相关者的反馈，以提出设计建议、对可用性问题进行分类，并确定改进COPD患者教育社交媒体资源中心可用性的潜在解决方案的优先级。
