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慢性阻塞性肺疾病的 Facebook 群组:社交媒体内容分析。

Facebook Groups on Chronic Obstructive Pulmonary Disease: Social Media Content Analysis.

机构信息

Department of Health Education and Promotion, East Carolina University, Greenville, NC 27858, USA.

STEM Translational Communication Center, University of Florida, Gainesville, FL 679205, USA.

出版信息

Int J Environ Res Public Health. 2019 Oct 9;16(20):3789. doi: 10.3390/ijerph16203789.

Abstract

Facebook Groups facilitate information exchange and engagement for patients with chronic conditions, including those living with Chronic Obstructive Pulmonary Disease (COPD); however, little is known about how knowledge is diffused throughout these communities. This study aimed to evaluate the content that is available on COPD-related Facebook Groups, as well as the communication (self-disclosures, social support) and engagement (agreement, emotional reaction) strategies used by members to facilitate these resources. Two researchers independently searched the "Groups" category using the terms "COPD", "emphysema", and "chronic bronchitis". Twenty-six closed ( = 23) and public ( = 3) COPD Facebook Groups were identified with 87,082 total members. The vast majority of Group members belonged to closed ( = 84,684; 97.25%) as compared to open ( = 2398; 2.75%) groups. Medications were the most commonly addressed self-management topic ( = 48; 26.7%). While overall engagement with wall posts was low, the number of "likes" (an indicator of agreement) was significantly greater for wall posts that demonstrated social support as compared to posts that did not ( < 0.001). Findings from this study showed that COPD Facebook group members share specific disease-related experiences and request information about select self-management topics. This information can be used to improve the quality of self-management support provided to members of popular COPD Facebook groups.

摘要

脸书群组为慢性病患者(包括慢性阻塞性肺病患者)提供了信息交流和互动的平台;然而,对于这些社区中知识是如何传播的,我们知之甚少。本研究旨在评估 COPD 相关脸书群组中提供的内容,以及成员用来促进这些资源的交流(自我表露、社会支持)和参与(认同、情绪反应)策略。两名研究人员使用“COPD”、“肺气肿”和“慢性支气管炎”等术语,分别独立地从“群组”类别中进行搜索。共确定了 26 个封闭(=23)和公开(=3)的 COPD 脸书群组,总共有 87082 名成员。与开放群组(=2398;2.75%)相比,绝大多数群组成员属于封闭群组(=84684;97.25%)。自我管理方面,最常讨论的药物治疗话题有 48 个(占 26.7%)。虽然整体帖子参与度较低,但与没有展示社会支持的帖子相比,展示社会支持的帖子获得的“点赞”(认同的指标)数量明显更多(<0.001)。本研究结果表明,COPD 脸书群组的成员分享特定的疾病相关经验,并请求有关特定自我管理主题的信息。这些信息可用于提高为广受欢迎的 COPD 脸书群组成员提供的自我管理支持的质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b953/6843182/99cc676726fd/ijerph-16-03789-g001.jpg

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