能力、同情心与自我关怀：心力衰竭患者家庭护理的需求与担忧
Competence, Compassion, and Care of the Self: Family Caregiving Needs and Concerns in Heart Failure.
作者信息
Sullivan Barbara-Jean, Marcuccilli Linda, Sloan Rebecca, Gradus-Pizlo Irmina, Bakas Tamilyn, Jung Miyeon, Pressler Susan J
机构信息
Barbara-Jean Sullivan, PhD Clinical Assistant Professor Emerita, School of Nursing, University of Michigan, and Department of Psychiatry, University of Michigan Health Services, Ann Arbor.Linda Marcuccilli, PhD, RN Associate Professor, American Sentinel University, Aurora, Colorado.Rebecca Sloan, PhD, RN Associate Professor Emerita, School of Nursing, Indiana University, Indianapolis.Irmina Gradus-Pizlo, MD Associate Professor, School of Medicine, Indiana University, Krannert Institute of Cardiology, and Director, Indiana University Health Advanced Heart Care Program, Indianapolis.Tamilyn Bakas, PhD, RN Professor and Chair, School of Nursing, Department of Science of Nursing Care, Indiana University, Indianapolis.Miyeon Jung, PhD(c), MSN, RN School of Nursing, University of Michigan, Ann Arbor.Susan J. Pressler, PhD, RN, FAHA, FAAN Professor, Department of Health Behavior and Biological Sciences, School of Nursing, University of Michigan, Ann Arbor.
出版信息
J Cardiovasc Nurs. 2016 May-Jun;31(3):209-14. doi: 10.1097/JCN.0000000000000241.
BACKGROUND
Family caregivers are essential to the well-being of patients with chronic heart failure (HF) because they provide care in managing complex medication regimens, dietary sodium restrictions, and symptoms.
OBJECTIVE
The purpose of this qualitative study was to gain a deeper understanding of the HF caregiving experience and describe the needs and concerns expressed by caregivers.
METHODS
Qualitative descriptive methodology was conducted using data from responses to open-ended questions asked as part of a larger longitudinal study. The sample was 63 patients with HF and 63 family caregivers.
RESULTS
Using basic content analysis, the 3 main themes of needs and concerns that emerged were competence concerns, compassion maintenance, and care of the self. Subthemes of competence concerns were doing things right, making a serious mistake, and uncertainty.
CONCLUSIONS
Family caregivers of patients with HF had many needs and concerns about their competence in performing tasks, their compassion, and caring for themselves. Data can be used to design testable interventions to improve the HF caregiving experience for patients and caregivers.
背景
家庭照护者对于慢性心力衰竭（HF）患者的健康至关重要，因为他们在管理复杂的药物治疗方案、饮食钠限制和症状方面提供照护。
目的
这项定性研究的目的是更深入地了解心力衰竭照护经历，并描述照护者表达的需求和担忧。
方法
采用定性描述方法，使用作为一项更大规模纵向研究一部分所提出的开放式问题的回答数据。样本包括63例心力衰竭患者和63名家庭照护者。
结果
通过基本内容分析，出现的需求和担忧的3个主要主题是能力担忧、同情心维持和自我照护。能力担忧的子主题是做对事情、犯严重错误和不确定性。
结论
心力衰竭患者的家庭照护者对自己执行任务的能力、同情心和自我照护有许多需求和担忧。这些数据可用于设计可测试的干预措施，以改善患者和照护者的心力衰竭照护体验。
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