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中国自闭症谱系障碍儿童家庭中的社会支持与家庭生活质量:家庭凝聚力和适应性的中介作用

Social support and family quality of life in Chinese families of children with autism spectrum disorder: the mediating role of family cohesion and adaptability.

作者信息

Lei Xianmei, Kantor Jiří

机构信息

College of Special Education, Leshan Normal University, Leshan City, Sichuan Province, China.

Institute of Special Educational Studies, Palacký University, Olomouc, Czech Republic.

出版信息

Int J Dev Disabil. 2020 Aug 12;68(4):454-461. doi: 10.1080/20473869.2020.1803706. eCollection 2022.

Abstract

BACKGROUND

The current study examined the interrelations among social support, family quality of life (FQOL), and family cohesion and adaptability in Chinese families of children with autism spectrum disorder (ASD).

METHODS

A sample of 163 caregivers of children with ASD in China were surveyed with the Social Support Rating Scale, Beach Center Family Quality of Life Scale, and Chinese version of Family Adaptability and Cohesion Scale II, respectively. We used structural equation modeling to examine the mediating role of family cohesion and adaptability on the relationship between social support and FQOL.

RESULTS

The results indicated that social support had a positive impact on FQOL and that family cohesion and adaptability completely mediated the relationship between social support and caregivers' satisfaction on FQOL.

CONCLUSIONS

Facilitating family cohesion and adaptability by providing social support may be beneficial to help families of children with ASD improve their FQOL. The findings identified the need for developing targeted interventions for this population.

摘要

背景

本研究探讨了中国自闭症谱系障碍(ASD)儿童家庭中社会支持、家庭生活质量(FQOL)以及家庭凝聚力和适应性之间的相互关系。

方法

分别使用社会支持评定量表、海滩中心家庭生活质量量表和中文版家庭适应性与凝聚力量表II对163名中国ASD儿童的照料者进行了调查。我们采用结构方程模型来检验家庭凝聚力和适应性在社会支持与FQOL关系中的中介作用。

结果

结果表明,社会支持对FQOL有积极影响,家庭凝聚力和适应性完全中介了社会支持与照料者对FQOL满意度之间的关系。

结论

通过提供社会支持来促进家庭凝聚力和适应性可能有助于帮助ASD儿童家庭提高其FQOL。研究结果表明需要针对这一人群制定有针对性的干预措施。

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Family quality of life of Chinese families of children with intellectual disabilities.中国智力残疾儿童家庭的生活质量。
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