Soniewicka Marta
Bioethics. 2015 Oct;29(8):557-63. doi: 10.1111/bioe.12153. Epub 2015 Feb 17.
The article addresses the problem of disability in the context of reproductive decisions based on genetic information. It poses the question of whether selective procreation should be considered as a moral obligation of prospective parents. To answer this question, a number of different ethical approaches to the problem are presented and critically analysed: the utilitarian; Julian Savulescu's principle of procreative beneficence; the rights-based. The main thesis of the article is that these approaches fail to provide any appealing principles on which reproductive decisions should be based. They constitute failures of imagination which may result in counter-intuitive moral judgments about both life with disability and genetic selection. A full appreciation of the ethical significance of recognition in procreative decisions leads to a more nuanced and morally satisfying view than other leading alternatives presented in the article.
本文探讨了基于基因信息进行生殖决策背景下的残疾问题。它提出了选择性生育是否应被视为准父母道德义务的问题。为回答这个问题,文中介绍并批判性地分析了针对该问题的一些不同伦理方法:功利主义;朱利安·萨夫勒斯库的生殖利他主义原则;基于权利的方法。本文的主要论点是,这些方法未能提供任何有吸引力的原则来作为生殖决策的依据。它们是想象力的失败,可能导致对残疾生活和基因选择做出违背直觉的道德判断。与本文中提出的其他主要替代观点相比,充分认识到认可在生殖决策中的伦理意义会带来一种更细致入微且在道德上更令人满意的观点。