Ahmadi M, Jahani S, Poormansouri S, Shariati A, Tabesh H
Lecturer in Nursing and Midwifery, Department of Nursing, Nursing and Midwifery School, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, I.R. Iran.
MS.c student in Nursing, Department of Nursing, Nursing and Midwifery School, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, I.R. Iran.
Iran J Ped Hematol Oncol. 2015;5(1):18-26. Epub 2015 Mar 15.
Sickle cell patients suffer from many physical, psychological, and social problems that can affect their quality of life. To deal with this chronic condition and manage their disease and prevent complications associated with the disease, they must learn skills and behaviours. The aim of this study was to determine the effectiveness of self-management programs on quality of life in these patients.
Samples of this quasi-experimental study, which included 69 patients with sickle cell disease referring to the Thalassemia Clinic of Shafa Hospital, were entered into the study by census method. Patients received a self-management program using the 5A model for 12 weeks, while their quality of life before the intervention were assessed at the twelfth week and thirty-sixth week using SF-36 questionnaire. Data were analyzed by descriptive statistics, paired t-test, Wilcoxon test, Hotelling's T2, and repeated measures test.
The eight dimensions and the total QoL score after intervention were significantly increased compared to those before the intervention (P<0.001). Repeated measures test showed that the mean score of eight QoL dimensions and the total QoL score decreased in the thirty-sixth week, compared to twelfth week. However, it was significantly enhanced in comparison with the intervention baseline (P<0.05).
Current study revealed the efficacy of self-management interventions on the quality of life in patients with sickle cell disease. Therefore, application of this supportive method could be useful to empower the patients and help them to manage the disease.
镰状细胞病患者面临许多身体、心理和社会问题，这些问题会影响他们的生活质量。为了应对这种慢性病，管理他们的疾病并预防与疾病相关的并发症，他们必须学习技能和行为。本研究的目的是确定自我管理项目对这些患者生活质量的有效性。
这项准实验研究的样本包括69名前往沙法医院地中海贫血诊所就诊的镰状细胞病患者，采用普查法纳入研究。患者使用5A模型接受为期12周的自我管理项目，同时在干预前、干预第12周和第36周使用SF-36问卷评估他们的生活质量。数据通过描述性统计、配对t检验、威尔科克森检验、霍特林T2检验和重复测量检验进行分析。
与干预前相比，干预后八个维度及生活质量总分显著提高（P<0.001）。重复测量检验显示，与第12周相比，第36周生活质量八个维度的平均分及生活质量总分有所下降。然而，与干预基线相比有显著提高（P<0.05）。
当前研究揭示了自我管理干预对镰状细胞病患者生活质量的疗效。因此，应用这种支持性方法可能有助于增强患者能力并帮助他们管理疾病。
