Borimnejad Leili, Parvizy Soroor, Haghaani Hamid, Sheibani Belgheis
Nursing Care Research Center, School of Nursing and Midwifery, Iran University of Medical Sciences, Tehran, Iran.
Department of Nursing, School of Nursing and Midwifery, Iran University of Medical Sciences, Tehran, Iran.
Int J Community Based Nurs Midwifery. 2018 Jan;6(1):29-38.
Chronic nature of thalassemia causes changes in different aspects of life in patients, including their self-efficacy. The aim of this study was to determine the effect of family-centered empowerment program on the self-efficacy of adolescents with Thalassemia major.
A quasi-experimental study was performed on adolescents with thalassemia major in 2013 in Bandar Abbas, Iran. The participants were divided into intervention and control groups, respectively. Research instruments included demographic data questionnaire, need assessment self-made questionnaire, general self-efficacy scale, and sickle cell self-efficacy scale. After collecting the data from the pre-intervention step, family-centered empowerment program was implemented for the intervention group and secondary test was conducted six weeks after the intervention and the results were analyzed by statistical SPSS-21 software, using independent t-test, paired t-test, Chi-square and Fisher's exact test, and descriptive statistics. A significance level of P<0.05 was considered as significant.
The mean and standard deviation of the adolescents' age were 16±1.9 in the intervention group and 15.2±2 in the control group. Independent t-test showed a significant difference between the two groups after the intervention for both self-efficacies (P<0.01 and P=0.02). In the control group, the results of general self-efficacy scores after six weeks' time were reduced compared to the previous one while disease-related self-efficacy scores in the same group after six weeks' time increased and paired t-test indicated a significant difference in the mean scores for both self-efficacies in both groups.
Implementation of family-centered empowerment program for patients with thalassemia major is practically feasible and it can increase self-efficacy in these patients. It is suggested that the program should be used in comprehensive care protocols of children and adolescents. IRCT201407211788N8.
地中海贫血的慢性病程会导致患者生活的各个方面发生变化，包括自我效能感。本研究的目的是确定以家庭为中心的赋权计划对重型地中海贫血青少年自我效能感的影响。
2013年在伊朗阿巴斯港对重型地中海贫血青少年进行了一项准实验研究。参与者分别分为干预组和对照组。研究工具包括人口统计学数据问卷、自制需求评估问卷、一般自我效能量表和镰状细胞自我效能量表。在干预前阶段收集数据后，对干预组实施以家庭为中心的赋权计划，并在干预六周后进行二次测试，结果使用统计软件SPSS-21进行分析，采用独立t检验、配对t检验、卡方检验和费舍尔精确检验以及描述性统计。P<0.05的显著性水平被认为具有统计学意义。
干预组青少年的平均年龄和标准差分别为16±1.9岁，对照组为15.2±2岁。独立t检验显示，干预后两组的自我效能感均有显著差异（P<0.01和P=0.02）。在对照组中，六周后的一般自我效能感得分结果与之前相比有所降低，而同一组六周后的疾病相关自我效能感得分有所增加，配对t检验表明两组的两种自我效能感平均得分均有显著差异。
对重型地中海贫血患者实施以家庭为中心的赋权计划在实际操作中是可行的，并且可以提高这些患者的自我效能感。建议该计划应纳入儿童和青少年的综合护理方案中。IRCT201407211788N8。
