Hynes Sinéad M, Field Becky, Ledgerd Ritchard, Swinson Thomas, Wenborn Jennifer, di Bona Laura, Moniz-Cook Esme, Poland Fiona, Orrell Martin
a Occupational Science and Occupational Therapy Department , Faculty of Medicine, University of British Columbia , Vancouver , Canada.
b Rehabilitation and Assistive Technology Group, Health Services Research , School of Health and Related Research (ScHARR), The University of Sheffield , Sheffield , United Kingdom.
Aging Ment Health. 2016 Jul;20(7):762-9. doi: 10.1080/13607863.2015.1037243. Epub 2015 May 1.
In the Netherlands, Graff et al. found Community Occupational Therapy in Dementia (COTiD) demonstrated benefits to people with dementia and family carers. In this study, focus groups took place with people with dementia and family carers to explore how to make COTiD relevant to the UK context.
Six focus groups (three with people living with dementia (n = 18) and three with family carers (n = 21)) took place. Participants were asked for their impressions of the intervention, the extent to which it could meet their needs, and what modifications were needed. Audio-recordings of the groups were transcribed and analysed.
Three key themes emerged covering 'loss and living with dementia', 'what helped us', and 'consistency and continuity'. People with dementia and family carers spoke about the impact of their diagnosis on them and their family and what strategies helped. Issues such as timing, follow-up, and the importance of an early intervention in preventing crises were highlighted. There was some concern over the length of the intervention and the disruption it might cause to current schedules.
Overall, participants were optimistic about COTiD being used in the United Kingdom if it was to be introduced in a flexible and timely manner, incorporating the needs and existing strategies of the person with dementia. These outcomes have led to changes, such as incorporating more flexibility into COTiD, being made to the intervention prior to its implementation in the United Kingdom.
在荷兰,格拉夫等人发现社区痴呆症职业疗法(COTiD)对痴呆症患者及其家庭护理人员有益。在本研究中,与痴呆症患者及其家庭护理人员进行了焦点小组讨论,以探讨如何使COTiD适用于英国的情况。
进行了六个焦点小组讨论(三个小组由痴呆症患者组成(n = 18),三个小组由家庭护理人员组成(n = 21))。参与者被问及他们对该干预措施的印象、它能满足他们需求的程度以及需要做出哪些修改。对小组讨论的录音进行了转录和分析。
出现了三个关键主题,涵盖“与痴呆症共存及丧失”“对我们有帮助的方面”以及“一致性和连续性”。痴呆症患者及其家庭护理人员谈到了诊断对他们自己及其家庭的影响以及哪些策略有帮助。强调了诸如时间安排、随访以及早期干预在预防危机方面的重要性等问题。对干预措施的时长及其可能对当前日程安排造成的干扰存在一些担忧。
总体而言,如果以灵活且及时的方式引入COTiD,并结合痴呆症患者的需求和现有策略,参与者对其在英国的应用持乐观态度。这些结果促使在COTiD于英国实施之前对该干预措施做出了一些改变,比如使其更具灵活性。