Fauske Lena, Bruland Oyvind S, Grov Ellen Karine, Bondevik Hilde
Department of Oncology, Oslo University Hospital, Norwegian Radium Hospital, P.O. Box 5960, Nydalen, 0424 Oslo, Norway.
Department of Oncology, Oslo University Hospital, Norwegian Radium Hospital, P.O. Box 5960, Nydalen, 0424 Oslo, Norway ; Institute of Clinical Medicine, University of Oslo, P.O. Box 1078, Blindern, 0316 Oslo, Norway.
Sarcoma. 2015;2015:484196. doi: 10.1155/2015/484196. Epub 2015 Apr 9.
Purpose. Our study aims to explore how former cancer patients experience physical and psychosocial late effects 3-7 years after they underwent treatment for primary bone sarcoma in the hip/pelvic region. A qualitative, phenomenological, and hermeneutic design was applied. Methods. Sarcoma survivors (n = 10) previously treated at Oslo University Hospital, Norwegian Radium Hospital were selected to participate. In-depth and semistructured interviews were conducted. The interviews were analysed using inductive thematic analysis. Results. The participants reported that the late effects had three core spheres of impact: "their current daily life," "their future opportunities," and "their identity." They expressed negative changes in activity, increased dependence on others, and exclusion from participation in different areas. Their daily life, work, sports activities, and social life were all affected. Several of their experiences are similar to those described by people with functional impairment or disability. Conclusion. Patients cured of bone cancer in the hip/pelvic region pay a significant price in terms of functional impairment, practical challenges, exclusion from important aspects of life, and loss of previous identity. It is important to appreciate this in order to help bone cancer survivors who struggle to reorient their life and build a secure new identity.
目的。我们的研究旨在探讨曾患癌症的患者在接受髋部/骨盆区域原发性骨肉瘤治疗3至7年后，身体和心理社会方面的晚期影响。采用了定性、现象学和诠释学设计。方法。选取曾在挪威镭医院奥斯陆大学医院接受治疗的肉瘤幸存者（n = 10）参与研究。进行了深入的半结构化访谈。采用归纳主题分析法对访谈进行分析。结果。参与者报告称，晚期影响有三个核心影响领域：“他们当前的日常生活”、“他们未来的机会”和“他们的身份”。他们表示在活动方面出现了负面变化，对他人的依赖增加，并且被排除在不同领域的参与之外。他们的日常生活、工作、体育活动和社交生活均受到影响。他们的一些经历与功能障碍或残疾者所描述的经历相似。结论。髋部/骨盆区域骨癌治愈患者在功能障碍、实际挑战、被排除在生活重要方面以及失去先前身份方面付出了巨大代价。认识到这一点对于帮助那些努力重新定位生活并建立稳固新身份的骨癌幸存者很重要。
