患有局灶性肌张力障碍的音乐家的生活满意度。
Life satisfaction of musicians with focal dystonia.
作者信息
Lee A, Eich C, Ioannou C I, Altenmüller E
机构信息
Institute of Music Physiology and Musicians' Medicine, University of Music, Drama and Media Hanover, Emmichplatz 1, 30175 Hanover, Germany, *Both authors contributed equally to the work and are co-first authors.
Institute of Music Physiology and Musicians' Medicine, University of Music, Drama and Media Hanover, Emmichplatz 1, 30175 Hanover, Germany, Department of Psychology, University of Hamburg, Mittelweg 177, 20148 Hamburg, Germany. *Both authors contributed equally to the work and are co-first authors.
出版信息
Occup Med (Lond). 2015 Jul;65(5):380-5. doi: 10.1093/occmed/kqv038. Epub 2015 May 11.
BACKGROUND
Little is known about the effects of musicians' dystonia (MD) on patients' life satisfaction.
AIMS
To assess general life satisfaction in patients with MD with regard to their health and jobs, in relation to the duration and course of the condition.
METHODS
We asked patients with MD and a group of healthy musicians (controls) to complete a life satisfaction questionnaire. We analysed responses from those who had to change their profession and those who did not, and we assessed life satisfaction scores in relation to the duration and the course of the condition.
RESULTS
Of the 642 patients contacted, 295 responded (46%). We excluded 52 amateur musicians and analysed a sample of 243 patients with MD. We contacted an unknown number of healthy musicians and 57 responded. We found no differences in life satisfaction between patients and controls or between patients who had to change their profession and those who did not and no correlations between life satisfaction and the duration or the course of the disease.
CONCLUSIONS
Musicians find a way to cope with dystonia, irrespective of the course of the disease or a change of profession. Patients should be made aware of self-regulatory mechanisms and the probability of being able to cope and be supported in selecting their goals and achieving them.
背景
关于音乐家肌张力障碍（MD）对患者生活满意度的影响，人们了解甚少。
目的
评估MD患者在健康和工作方面的总体生活满意度，并探讨其与病情持续时间和病程的关系。
方法
我们让MD患者和一组健康音乐家（对照组）填写一份生活满意度问卷。我们分析了那些不得不改变职业和未改变职业的患者的回答，并评估了生活满意度得分与病情持续时间和病程的关系。
结果
在联系的642名患者中，295人回复（46%）。我们排除了52名业余音乐家，分析了243名MD患者的样本。我们联系了数量不详的健康音乐家，57人回复。我们发现患者与对照组之间、不得不改变职业的患者与未改变职业的患者之间在生活满意度上没有差异，生活满意度与疾病持续时间或病程之间也没有相关性。
结论
音乐家们找到了应对肌张力障碍的方法，无论疾病病程如何或是否改变职业。应让患者了解自我调节机制以及他们有能力应对并在选择目标和实现目标方面获得支持的可能性。
Zotero 插件