Thayssen Susanne, Hansen Dorte Gilså, Søndergaard Jens, Høybye Mette Terp, Christensen Palle Mark, Hansen Helle Ploug
National Research Center of Cancer Rehabilitation, Research Unit of General Practice, Department of Public Health, University of Southern Denmark, J.B. Winsløws Vej 9A, 5000, Odense C, Denmark.
Research Unit of General Practice, Department of Public Health, University of Southern Denmark, Odense C, Denmark.
Patient. 2016 Jun;9(3):223-30. doi: 10.1007/s40271-015-0144-x.
Systematic assessments of cancer patients' rehabilitation needs are recommended, and questionnaires are considered to be useful tools when making such assessments.
The aim of this study was to explore patients' experience of completing a questionnaire about their problems and distress at home prior to a needs assessment in general practice.
Sixteen patients were recruited by their general practitioners (GPs). Semi-structured interviews were conducted in the home of the participants and at the general practice, with one interview taking place over the phone. Data were analyzed using systematic text condensation.
Twelve women and four men aged between 49 and 83 years of age, and diagnosed with various cancers between 1 month and 4 years ago, participated in the study. The results showed how the completion of a questionnaire at home provided patients with an opportunity to reflect on different problems, and the importance of these problems to the patient's everyday life, as well as an opportunity to articulate which problems they wanted to discuss with their GPs.
The results demonstrate that completing a questionnaire seems to stimulate patients' ability to reflect on their situation, clarify the importance of different problems to their everyday lives, and articulate these considerations to their GPs. Furthermore, we have shown that a questionnaire has the ability to interact with the patient and instigate a process of awareness. It is important to acknowledge this process of interaction between patient and questionnaire as an important part of understanding how and why questionnaires may support the patient when completing a questionnaire prior to a clinical encounter.
建议对癌症患者的康复需求进行系统评估，问卷被认为是进行此类评估时的有用工具。
本研究的目的是探讨患者在全科医疗需求评估之前填写一份关于其在家中问题和困扰的问卷的体验。
由全科医生招募了16名患者。在参与者家中和全科医疗场所进行了半结构化访谈，其中一次访谈通过电话进行。使用系统文本浓缩法对数据进行分析。
12名女性和4名男性参与了研究，年龄在49至83岁之间，在1个月至4年前被诊断患有各种癌症。结果表明，在家中填写问卷如何为患者提供了一个反思不同问题的机会，以及这些问题对患者日常生活的重要性，同时也提供了一个阐明他们想与全科医生讨论哪些问题的机会。
结果表明，填写问卷似乎能激发患者反思自身状况的能力，明确不同问题对其日常生活的重要性，并向全科医生阐明这些想法。此外，我们已经表明问卷有能力与患者互动并引发一个认知过程。认识到患者与问卷之间的这种互动过程是理解问卷在临床接触前填写时如何以及为何可能支持患者的重要组成部分，这一点很重要。
