Hawkey G M, Hawkey C J
Department of Therapeutics, University Hospital, Nottingham.
Gut. 1989 Nov;30(11):1641-6. doi: 10.1136/gut.30.11.1641.
Twelve patient information leaflets concerning common gastrointestinal diseases were produced by the British Digestive Foundation and evaluated to determine whether patients knew more about their disease if they received a leaflet. Eleven hundred and fifty patients attending gastroenterology clinics in the United Kingdom were assessed by postal questionnaire of whom half had received a leaflet relevant to their diagnosis six weeks before assessment. Seven hundred and fifty one replied (398 leafleted, 353 non-leafleted). Most patients found the leaflets helpful and easy to understand; few found them worrying. They were regarded as a better source of information than doctors, particularly for information about the characteristics of the illness and side effects of treatment. In all diagnostic groups assessed the patients' knowledge of their disease was significantly greater if they had received a leaflet than if they had not. Individual responses by patients without leaflets showed that fundamental misconceptions persisted about digestive diseases. The British Digestive Foundation leaflets are an effective means of imparting disease related information to patients.
英国消化基金会制作了12份关于常见胃肠疾病的患者信息手册，并进行了评估，以确定患者收到手册后是否对自己的疾病了解更多。通过邮寄问卷对英国1150名就诊于胃肠病诊所的患者进行了评估，其中一半患者在评估前六周收到了与他们诊断相关的手册。751人回复（398人收到手册，353人未收到手册）。大多数患者认为手册有帮助且易于理解；很少有人觉得手册令人担忧。与医生相比，手册被视为更好的信息来源，特别是关于疾病特征和治疗副作用的信息。在所有评估的诊断组中，收到手册的患者对疾病的了解明显多于未收到手册的患者。未收到手册的患者的个人回复表明，对消化系统疾病仍存在基本误解。英国消化基金会的手册是向患者传授疾病相关信息的有效手段。
