Bellin Melissa H, Osteen Philip, Kub Joan, Bollinger Mary E, Tsoukleris Mona, Chaikind Laurie, Butz Arlene M
J Pediatr Health Care. 2015 Nov-Dec;29(6):536-46. doi: 10.1016/j.pedhc.2015.04.018. Epub 2015 May 30.
The intent of this analysis was to examine the longitudinal effects of risk and protective factors on quality of life (QOL) in caregivers of minority children with asthma.
Caregivers (n = 300) reported on demographics, child asthma characteristics, daily asthma caregiving stress, general life stress, social support, and QOL. Latent growth curve modeling examined changes in QOL across 12 months as a function of stress, asthma control, and social support.
Caregivers were primarily the biological mother (92%), single (71%), unemployed (55%), and living in poverty. Children were African American (96%), Medicaid eligible (92%), and had poorly controlled asthma (93%). Lower QOL was associated with higher life stress, greater asthma caregiving stress, and lower asthma control over time.
Findings underscore the importance of assessing objective and subjective measures of asthma burden and daily life stress in clinical encounters with urban, low-income caregivers of children with poorly controlled asthma.
本分析的目的是研究风险因素和保护因素对患有哮喘的少数族裔儿童的照顾者生活质量(QOL)的纵向影响。
照顾者(n = 300)报告了人口统计学特征、儿童哮喘特征、日常哮喘护理压力、一般生活压力、社会支持和生活质量。潜在增长曲线模型研究了作为压力、哮喘控制和社会支持函数的12个月内生活质量的变化。
照顾者主要是亲生母亲(92%)、单身(71%)、失业(55%)且生活贫困。儿童为非裔美国人(96%)、符合医疗补助条件(92%)且哮喘控制不佳(93%)。随着时间的推移,较低的生活质量与较高的生活压力、更大的哮喘护理压力以及较差的哮喘控制相关。
研究结果强调了在与哮喘控制不佳的城市低收入儿童照顾者的临床接触中,评估哮喘负担和日常生活压力的客观和主观指标的重要性。