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改善城市内哮喘控制不佳的儿童的护理:母亲希望你知道的事情。

Improving Care of Inner-City Children with Poorly Controlled Asthma: What Mothers Want You to Know.

出版信息

J Pediatr Health Care. 2018 Jul-Aug;32(4):387-398. doi: 10.1016/j.pedhc.2017.12.009. Epub 2018 Mar 12.

Abstract

INTRODUCTION

Low-income caregiver perspectives on asthma management are understudied but may illuminate strategies to improve care delivery and child outcomes.

METHOD

Purposive sampling methods were used to recruit 15 caregivers of children with frequent asthma emergency department visits. Interviews explored how poverty and stress affect asthma management. Grounded theory coding techniques were used to analyze the data.

RESULTS

Participants were the biological mother (100%) and were poor (75% had mean annual income ≤ $30,000). Their children (mean age = 6.9 years) were African American (100%), enrolled in Medicaid (100%), and averaged 1.5 emergency department visits over the prior 3 months. Four themes emerged: (a) Deplorable Housing Conditions, (b) Allies and Adversaries in School-Based Asthma Management, (c) Satisfaction With Asthma Health Care Delivery, and (d) Prevalent Psychological Distress.

DISCUSSION

Impoverished caregivers of children with frequent asthma emergency department visits describe stress that is multifaceted, overwhelming, and difficult to eradicate. Their experiences underscore the need for improved school-based asthma management and family-centered approaches to health care delivery.

摘要

简介

低收入照顾者对哮喘管理的看法研究较少,但可能阐明改善护理提供和儿童预后的策略。

方法

采用目的性抽样方法招募了 15 名经常带孩子去急诊室看哮喘的照顾者。访谈探讨了贫困和压力如何影响哮喘管理。采用扎根理论编码技术对数据进行分析。

结果

参与者是孩子的亲生母亲(100%),并且家庭贫困(75%的人平均年收入≤30000 美元)。他们的孩子(平均年龄=6.9 岁)都是非裔美国人(100%),参加了医疗补助计划(100%),过去 3 个月平均有 1.5 次急诊就诊。有 4 个主题出现:(a)恶劣的住房条件,(b)学校哮喘管理中的盟友和敌人,(c)对哮喘保健提供的满意度,以及(d)普遍存在的心理困扰。

讨论

经常带孩子去急诊室看哮喘的贫困照顾者描述了多方面的、压倒性的、难以消除的压力。他们的经历突显了需要改善学校的哮喘管理和以家庭为中心的医疗保健提供方法。

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