Pascal J, Johnson N, Dickson-Swift V, McGrath P, Dangerfield F
Department of Public and Community Health, La Trobe Rural Health School, La Trobe University, Bendigo, Vic., 3550, Australia.
Centre for Community Science, Population & Social Health Program, Griffith Health Institute, Griffith University, Meadowbrook, Qld, 4131, Australia.
Eur J Cancer Care (Engl). 2016 May;25(3):381-90. doi: 10.1111/ecc.12337. Epub 2015 Jun 5.
The concept of receptivity is a new way of understanding the personal and social factors that affect a person living with and beyond cancer, and how these factors influence access to formal supportive care service provision and planning. This article contributes to new knowledge through applying the concept of receptivity to informal supportive cancer care in regional Australia. Literature indicates that a cancer diagnosis is a life-changing experience, particularly in regional communities, where survival rates are lower and there are significant barriers to accessing services. Heideggerian phenomenology informed the design of the study and allowed for a rich and nuanced understanding of participants lived experiences of informal supportive cancer care. These experiences were captured using in-depth interviews, which were subsequently thematically analysed. Nineteen participants were recruited from across regional Victoria, Australia. Participants self-reported a range of stages and types of cancer. Significantly, findings revealed that most participants were not referred to, and did not seek, formal supportive care. Instead, they were receptive to informal supportive care. Understanding receptivity and the role of anxiety and fear of death has implications for partners, family, community members, as well as professionals working with people with living with and beyond cancer.
接受性这一概念是理解影响癌症患者及其康复后的个人和社会因素的一种新方式，以及这些因素如何影响获得正式支持性护理服务的提供和规划。本文通过将接受性概念应用于澳大利亚地区的非正式癌症支持性护理，为新知识做出了贡献。文献表明，癌症诊断是一种改变人生的经历，尤其是在地区社区，那里的生存率较低，获得服务存在重大障碍。海德格尔现象学为该研究的设计提供了依据，并使我们能够对参与者在非正式癌症支持性护理中的生活经历有丰富而细致入微的理解。这些经历通过深入访谈得以捕捉，随后进行了主题分析。19名参与者从澳大利亚维多利亚州各地招募。参与者自我报告了一系列癌症阶段和类型。值得注意的是，研究结果显示，大多数参与者没有被转介到，也没有寻求正式的支持性护理。相反，他们接受非正式的支持性护理。理解接受性以及焦虑和对死亡的恐惧所起的作用，对伴侣、家人、社区成员以及与癌症患者及其康复者打交道的专业人员都有影响。
