Wraight Catherine L, McCoy Jennifer, Meadow William
Department of Pediatrics, University of Chicago, Chicago, IL, USA.
Department of Pediatrics, University of Wisconsin - Madison, Madison, WI, USA.
Acta Paediatr. 2015 Oct;104(10):1012-7. doi: 10.1111/apa.13071. Epub 2015 Jun 26.
To determine whether parents of critically ill premature infants feel that neonatal intensive care unit (NICU) therapy is worthwhile, independent of their infant's outcome.
The parent(s) of ventilated infants in the NICU were interviewed. Prominent themes were identified within the text of transcribed interviews and the frequency of each theme tabulated.
The parents of 10 infants were interviewed. All parents experienced stress and understood the uncertain future of their infants. Parents remained optimistic and uniformly expressed that NICU intervention was 'worth it'. No parent described concern about 'torture', 'cruelty' or 'futile care'.
Although parents experience significant stress while their infant is in the NICU, their emotional experiences are much more broad. They feel confident in their decision to give their child a chance, a responsibility to be informed and to make the best decisions they can and remain hopeful for a good outcome regardless of their child's condition.
确定危重新生儿重症监护病房（NICU）的治疗是否值得，而不考虑其婴儿的预后情况。
对NICU中使用呼吸机的婴儿的父母进行访谈。在转录访谈文本中确定突出主题，并将每个主题出现的频率制成表格。
对10名婴儿的父母进行了访谈。所有父母都经历了压力，并了解其婴儿不确定的未来。父母们仍保持乐观，一致表示NICU的干预是“值得的”。没有一位父母表示担心“折磨”“残忍”或“无效治疗”。
尽管父母在其婴儿处于NICU期间经历了巨大压力，但他们的情感体验更为广泛。他们对给孩子一个机会的决定充满信心，有责任了解情况并做出力所能及的最佳决定，并且无论孩子的状况如何，都对良好的预后抱有希望。
