Barnet Enfield and Haringey Mental Health Trust, UK.
University College London, UK.
Eur Eat Disord Rev. 2015 Jul;23(4):318-26. doi: 10.1002/erv.2367.
Little is known about how patients with long-term eating disorders manage their clinical problems. We carried out a preliminary qualitative study (using Thematic Analysis) of patients with severe and enduring anorexia nervosa (SEED-AN) in which we undertook recorded interviews in eight participants whose conditions had lasted 20-40 years. We found 15 principle features in physical, psychological, social, family, occupational and treatment realms. Psychological and social realms were most affected. Severe physical problems were reported. They described feelings of unworthiness, frugality regarding money and obsessive time-keeping. Persisting with negligible social networks, participants described depression and hopelessness, while somehow achieving a sense of pride at their endurance and survival in spite of the eating disorder. They emphasized the importance of professional help in managing their care. The severe and enduring description, often reserved for people with psychotic illness, is appropriately applied to SEED-AN, which has major impacts in all realms.
关于长期患有饮食失调症的患者如何应对其临床问题，我们知之甚少。我们对患有严重和持久神经性厌食症（SEED-AN）的患者进行了初步的定性研究（采用主题分析法），对 8 名病情持续 20-40 年的患者进行了记录访谈。我们发现，在生理、心理、社会、家庭、职业和治疗领域存在 15 个主要特征。心理和社会领域受到的影响最大。报告了严重的身体问题。他们描述了自己的无价值感、对金钱的节俭和对时间的过分关注。尽管社交网络微不足道，但参与者还是描述了自己的抑郁和绝望，同时，他们对自己能够忍受和生存下来感到自豪，尽管仍然患有饮食失调症。他们强调了专业帮助在管理护理方面的重要性。“严重和持久”的描述通常用于患有精神疾病的人，而这一描述恰当地适用于 SEED-AN，因为它在所有领域都产生了重大影响。
