Küçükdurmaz Fatih, Gomez Miguel M, Secrist Eric, Parvizi Javad
Rothman Institute at Thomas Jefferson University, 925 Chestnut St, Philadelphia, PA 19107.
Arch Bone Jt Surg. 2015 Jul;3(3):163-8.
The Internet has become the most widely-used source for patients seeking information more about their health and many sites geared towards this audience have gained widespread use in recent years. Additionally, many healthcare institutions publish their own patient-education web sites with information regarding common conditions. Little is known about how these resources impact patient health, though, as they have the potential both to inform and to misinform patients regarding their prognosis and possible treatments. In this study we investigated the reliability, readability and quality of information about femoracetabular impingement, a condition which commonly affects young patients.
The terms "hip impingement" and "femoracetabular impingement" were searched in Google® in November 2013 and the first 30 results were analyzed. The LIDA scale was used to assess website accessibility, usability and reliability. The DISCERN scale was used to assess reliability and quality of information. The FRE score was used to assess readability.
The patient-oriented sites performed significantly worse in LIDA reliability, and DISCERN reliability. However, the FRE score was significantly higher in patient-oriented sites.
According to our results, the websites intended to attract patients searching for information regarding femoroacetabular impingement are providing a highly accessible, readable information source, but do not appear to apply a comparable amount of rigor to scientific literature or healthcare practitioner websites in regard to matters such as citing sources for information, supplying methodology and including a publication date. This indicates that while these resources are easily accessed by patients, there is potential for them to be a source of misinformation.
互联网已成为患者获取更多健康信息最广泛使用的来源,近年来,许多面向这一受众的网站得到了广泛应用。此外,许多医疗机构都发布了自己的患者教育网站,提供有关常见病症的信息。然而,对于这些资源如何影响患者健康却知之甚少,因为它们有可能在患者的预后和可能的治疗方面提供正确信息,也有可能提供错误信息。在本研究中,我们调查了有关股骨髋臼撞击症(一种常见于年轻患者的病症)信息的可靠性、可读性和质量。
2013年11月在谷歌上搜索“髋关节撞击症”和“股骨髋臼撞击症”,并对前30个结果进行分析。使用LIDA量表评估网站的可访问性、可用性和可靠性。使用DISCERN量表评估信息的可靠性和质量。使用FRE分数评估可读性。
以患者为导向的网站在LIDA可靠性和DISCERN可靠性方面表现明显较差。然而,以患者为导向的网站的FRE分数明显更高。
根据我们的结果,旨在吸引搜索股骨髋臼撞击症信息的患者的网站提供了一个高度可访问、可读的信息来源,但在诸如信息来源引用、方法提供和出版日期等方面,似乎没有像科学文献或医疗从业者网站那样严格。这表明,虽然这些资源很容易被患者获取,但它们有可能成为错误信息的来源。