Chong LeeAi, Abdullah Adina
1 Hospis Malaysia, Kuala Lumpur, Malaysia.
2 University Malaya Primary Care Research Group, Department of Primary Care Medicine, Faculty of Medicine, University Malaya, Kuala Lumpur, Malaysia.
Am J Hosp Palliat Care. 2017 Mar;34(2):125-131. doi: 10.1177/1049909115607296. Epub 2016 Jul 10.
The aim of this study was to explore the experience of community palliative care nurses providing home care to children.
A qualitative study was conducted at the 3 community palliative care provider organizations in greater Kuala Lumpur from August to October 2014. Data were collected with semistructured interviews with 16 nurses who have provided care to children and was analyzed using thematic analysis. Two categories were identified: (1) challenges nurses faced and (2) coping strategies. The themes identified from the categories are (1) communication challenges, (2) inadequate training and knowledge, (3) personal suffering, (4) challenges of the system, (5) intrapersonal coping skills, (6) interpersonal coping strategies, and (7) systemic supports.
These results reinforces the need for integration of pediatric palliative care teaching and communication skills training into all undergraduate health care programs. Provider organizational support to meet the specific needs of the nurses in the community can help retain them in their role. It will also be important to develop standards for current and new palliative care services to ensure delivery of quality pediatric palliative care.
本研究旨在探讨社区姑息治疗护士为儿童提供居家护理的经历。
2014年8月至10月，在吉隆坡大都市区的3个社区姑息治疗服务提供机构开展了一项定性研究。对16名曾为儿童提供护理的护士进行半结构式访谈以收集数据，并采用主题分析法进行分析。确定了两个类别：（1）护士面临的挑战；（2）应对策略。从这些类别中确定的主题有：（1）沟通挑战；（2）培训和知识不足；（3）个人痛苦；（4）系统挑战；（5）个人应对技能；（6）人际应对策略；（7）系统支持。
这些结果强化了将儿科姑息治疗教学和沟通技能培训纳入所有本科医疗保健课程的必要性。服务提供机构给予支持以满足社区护士的特定需求，有助于使他们继续履行职责。制定现有和新姑息治疗服务的标准，以确保提供高质量的儿科姑息治疗也很重要。
