一种用于共享遗传风险的以家庭为中心的模式。
A Family-Centered Model for Sharing Genetic Risk.
作者信息
Daly Mary B
机构信息
Medical oncologist and epidemiologist and Chair of the Department of Clinical Genetics at Fox Chase Cancer Center. Her research focus places great emphasis on defining the best methods of communicating hereditary cancer risk information and on providing risk management strategies and coping skills to family members dealing with an increased risk for cancer.
出版信息
J Law Med Ethics. 2015 Fall;43(3):545-51. doi: 10.1111/jlme.12297.
Abstract
The successes of the Human Genome Project have ushered in a new era of genomic science. To effectively translate these discoveries, it will be critical to improve the communication of genetic risk within families. This will require a systematic approach that accounts for the nature of family relationships and sociocultural beliefs. This paper proposes the application of the Family Systems Illness Model, used in the setting of cancer care, to the evolving field of genomics.
摘要
人类基因组计划的成功开创了基因组科学的新纪元。为了有效地转化这些发现，改善家庭内部遗传风险的沟通将至关重要。这将需要一种系统的方法，该方法要考虑到家庭关系的性质和社会文化信仰。本文提议将用于癌症护理领域的家庭系统疾病模型应用于不断发展的基因组学领域。
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