Stolee Paul, Elliott Jacobi, McNeil Heather, Boscart Veronique, Heckman George A, Hutchinson Rebecca, Hedley Margaret, Glouberman Sholom, Judd Maria
School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario, Canada Schlegel-UW Research Institute for Aging, Kitchener, Ontario, Canada.
School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario, Canada.
BMJ Open. 2015 Nov 3;5(11):e008190. doi: 10.1136/bmjopen-2015-008190.
While patient and citizen engagement has been recognised as a crucial element in healthcare reform, limited attention has been paid to how best to engage seniors-the fastest growing segment of the population and the largest users of the healthcare system. To improve the healthcare services for this population, seniors and their families need to be engaged as active partners in healthcare decision-making, research and planning. This synthesis aims to understand the underlying context and mechanisms needed to achieve meaningful engagement of older adults in healthcare decision-making, research and planning.
The CHOICE Knowledge Synthesis Project: Choosing Healthcare Options by Involving Canada's Elderly aims to address this issue by synthesising current knowledge on patient, family, and caregiver engagement. A realist synthesis will support us to learn from other patient and citizen engagement initiatives, from previous research, and from seniors, families and caregivers themselves. The synthesis will guide development or adaptation of a framework, leading to the development of best practice guidelines and recommendations for engagement of older people and their families and caregivers in clinical decision-making, healthcare delivery, planning and research.
The components of this protocol involving consultation with patients or caregivers have received ethics clearance from the University of Waterloo, Office of Research Ethics (ORE#19094). After completion of the project, we will amalgamate the information collected into a knowledge synthesis report which will include best practice guidelines and recommendations for patient, family and caregiver engagement in clinical and health system planning and research contexts.
Will be further disseminated to citizens, clinicians, researchers and policymakers with the help of our partners.
CRD42015024749.
虽然患者和公民参与已被视为医疗改革的关键要素，但对于如何最好地让老年人参与其中却关注有限，老年人是人口中增长最快的群体，也是医疗系统的最大用户。为改善针对这一群体的医疗服务，老年人及其家庭需要作为积极伙伴参与医疗决策、研究和规划。本综述旨在了解实现老年人有意义地参与医疗决策、研究和规划所需的潜在背景和机制。
“选择医疗保健选项知识综合项目：通过让加拿大老年人参与来选择医疗保健选项”旨在通过综合有关患者、家庭和护理人员参与的现有知识来解决这一问题。实证综合将支持我们从其他患者和公民参与倡议、先前的研究以及老年人、家庭和护理人员自身中学习。该综合将指导框架的开发或调整，从而制定最佳实践指南以及关于老年人及其家庭和护理人员参与临床决策、医疗服务提供、规划和研究的建议。
本方案中涉及与患者或护理人员协商的部分已获得滑铁卢大学研究伦理办公室的伦理批准（ORE#19094）。项目完成后，我们将把收集到的信息整合为一份知识综合报告，其中将包括关于患者、家庭和护理人员参与临床及卫生系统规划和研究的最佳实践指南和建议。
将在我们合作伙伴的帮助下进一步传播给公民、临床医生、研究人员和政策制定者。
CRD42015024749。
