有慢性残疾儿童的家庭中生育其他子女的意愿及其对父母关系的影响。

Desire to have other children in families with a chronically disabled child and its effect on the relationship of the parents.

作者信息

Şimşek Tülay Tarsuslu, Taşçı Merve, Karabulut Demet

机构信息

Physical Therapy and Rehabilitation Academy, Dokuz Eylül University, İzmir, Turkey.

Aylin Private Education and Rehabilitation Center, Karabük, Turkey.

出版信息

Turk Pediatri Ars. 2015 Sep 1;50(3):163-9. doi: 10.5152/TurkPediatriArs.2015.2795. eCollection 2015 Sep.

DOI:10.5152/TurkPediatriArs.2015.2795

PMID:26568692

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4629924/

Abstract

AIM

The aim of this study was to examine the desire of the parents who had a chronically disabled child to have other children and to investigate the effect of having a disabled child on the relationship of the parents.

MATERIAL AND METHODS

The families of 145 chronically disabled children were included in the study. After the sociodemographic information belonging to the child and family were obtained, the prepared questionnaire form was used to interrogate if the parents lived together, the number of children in the family, if they wished to have other children and the relation of the disabled child with the household. Ethics committee approval was obtained from Dokuz Eylül University (date: 18.10.2012, decision number, 2012/34-13). The data obtained in the study were expressed as figures and percentages.

RESULTS

While 91.7% of the parents continued their relationship, 2.8% were divorced and 1.4% were left by their spouses. The rate of the parents who did not wish to have (or did not have) other children after a disabled child was found to be 65.2%. The major reason for the families not to wish to have other children was found to be the fact that they thought they could not spare enough time for their disabled child. While 35.1% of the parents stated that clemped together more tightly, 35.2% stated that their concerns about the future increased further. Fifty eight percent of the parents stated that social relations and community involvements were not affected, whereas others stated that they were affected in different ways.

CONCLUSIONS

Although the relationship between the parents was not affected to a great extent in families who had chronically disabled children, it was found that parents intensively experienced concern for the future. It was found that this also affected the desire of the parents who had a chronically disabled child to have other children with the concern that the child will be disabled.

摘要

目的

本研究旨在调查有慢性残疾子女的父母生育其他子女的意愿，并探究残疾子女对父母关系的影响。

材料与方法

本研究纳入了145名患有慢性残疾儿童的家庭。在获取了孩子和家庭的社会人口学信息后，使用编制好的问卷形式询问父母是否共同生活、家庭中的子女数量、他们是否希望生育其他子女以及残疾子女与家庭的关系。获得了多库兹艾于勒大学伦理委员会的批准（日期：2012年10月18日，决定编号，2012/34 - 13）。本研究中获得的数据以数字和百分比表示。

结果

91.7%的父母维持婚姻关系，2.8%离婚，1.4%被配偶遗弃。在发现有残疾子女后，不希望（或没有）生育其他子女的父母比例为65.2%。家庭不希望生育其他子女的主要原因是他们认为无法为残疾子女抽出足够的时间。35.1%的父母表示关系更紧密，35.2%的父母表示对未来的担忧进一步增加。58%的父母表示社会关系和社区参与未受影响，而其他人表示受到了不同程度的影响。