Petersen Carolyn
Global Business Solutions - BB 7, Mayo Clinic, 200 First St. SW, Rochester, MN 55905, USA
J Am Med Inform Assoc. 2016 May;23(3):456-61. doi: 10.1093/jamia/ocv184. Epub 2015 Dec 29.
The growing ability to collect and transmit patient-generated health data, also referred to as people-generated health data and patient-reported outcomes, is creating an opportunity to greatly improve how cancer survivors and their providers manage survivors' health in the months and years following cancer treatment. Although cancer survivors are at higher risk of chronic health problems and early death as a result of cancer treatment, some experience difficulty identifying and receiving the care they need to optimize their health post-treatment. This article describes the challenges that cancer survivors and their providers face in managing survivors' care and identifies several ways that using patient-generated health data can improve survivors' and providers' ability to manage survivorship care at the individual and population levels.
收集和传输患者生成的健康数据（也称为个人生成的健康数据和患者报告结果）的能力不断增强，这为大幅改善癌症幸存者及其医疗服务提供者在癌症治疗后的数月和数年中管理幸存者健康的方式创造了契机。尽管由于癌症治疗，癌症幸存者面临慢性健康问题和过早死亡的风险更高，但一些人在识别和获得优化治疗后健康所需的护理方面存在困难。本文描述了癌症幸存者及其医疗服务提供者在管理幸存者护理方面面临的挑战，并确定了几种利用患者生成的健康数据可以提高幸存者和医疗服务提供者在个体和人群层面管理癌症 survivorship care（生存护理，此处可结合上下文理解为癌症治疗后的后续护理等相关内容）能力的方法。
