Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, 17177, Stockholm, Sweden.
Department of Paediatrics, Örebro University Hospital, Örebro, Sweden.
Eur J Epidemiol. 2016 Feb;31(2):125-36. doi: 10.1007/s10654-016-0117-y. Epub 2016 Jan 14.
The primary aim of the Swedish national population registration system is to obtain data that (1) reflect the composition, relationship and identities of the Swedish population and (2) can be used as the basis for correct decisions and measures by government and other regulatory authorities. For this purpose, Sweden has established two population registers: (1) The Population Register, maintained by the Swedish National Tax Agency ("Folkbokföringsregistret"); and (2) The Total Population Register (TPR) maintained by the government agency Statistics Sweden ("Registret över totalbefolkningen"). The registers contain data on life events including birth, death, name change, marital status, family relationships and migration within Sweden as well as to and from other countries. Updates are transmitted daily from the Tax Agency to the TPR. In this paper we describe the two population registers and analyse their strengths and weaknesses. Virtually 100 % of births and deaths, 95 % of immigrations and 91 % of emigrations are reported to the Population Registers within 30 days and with a higher proportion over time. The over-coverage of the TPR, which is primarily due to underreported emigration data, has been estimated at up to 0.5 % of the Swedish population. Through the personal identity number, assigned to all residents staying at least 1 year in Sweden, data from the TPR can be used for medical research purposes, including family design studies since each individual can be linked to his or her parents, siblings and offspring. The TPR also allows for identification of general population controls, participants in cohort studies, as well as calculation of follow-up time.
瑞典国家人口登记系统的主要目的是获取数据，（1）反映瑞典人口的构成、关系和身份，（2）能够为政府和其他监管机构做出正确决策和采取措施提供依据。为此，瑞典建立了两个人口登记册：（1）人口登记册，由瑞典国家税务局维护（“Folkbokföringsregistret”）；（2）由政府机构瑞典统计局维护的总人口登记册（“Registret över totalbefolkningen”）。登记册包含包括在瑞典境内以及从其他国家到瑞典的出生、死亡、姓名变更、婚姻状况、家庭关系和移民等生命事件的数据。信息从税务局每天传输到 TPR。本文介绍了这两个人口登记册，并分析了它们的优缺点。几乎 100%的出生和死亡、95%的移民和 91%的移民在 30 天内报告给人口登记册，并且随着时间的推移比例更高。TPR 的覆盖范围过高，主要是由于移民数据报告不足，据估计占瑞典人口的 0.5%。通过分配给所有在瑞典居住至少 1 年的居民的个人身份号码，可以将 TPR 中的数据用于医学研究目的，包括家庭设计研究，因为每个个体都可以与其父母、兄弟姐妹和后代相关联。TPR 还可以识别一般人群对照、队列研究参与者，并计算随访时间。
