Haynes Erin N, Elam Sarah, Burns Roxanne, Spencer Alonzo, Yancey Elissa, Kuhnell Pierce, Alden Jody, Walton Mike, Reynolds Virgil, Newman Nicholas, Wright Robert O, Parsons Patrick J, Praamsma Meredith L, Palmer Christopher D, Dietrich Kim N
Department of Environmental Health, College of Medicine, University of Cincinnati, Cincinnati, Ohio, USA.
Environ Health Perspect. 2016 Feb;124(2):A24-7. doi: 10.1289/ehp.1510411.
Federal funding agencies increasingly support stakeholder participation in environmental health studies, and yet there is very little published research on engagement of community members in the development of data disclosure (DD) strategies. The Ohio Environmental Protection Agency reported airborne manganese (Mn) concentrations in East Liverpool, Ohio, 30 times higher than the reference concentration, which led to an academic–community research partnership to address community concern about Mn exposure, particularly among children. Children and their families were recruited to participate in a pilot study. Samples of blood and hair were collected from the children and analyzed for metals. DD mechanisms were developed using an iterative approach between community and academic partners. Individual DD letters were mailed to each participating family, and a community meeting was held. A post-meeting survey was administered to gauge community perception of the DD strategies. The purpose of this article is to demonstrate the effectiveness of engaging community partners in the conduct of environmental health research and in the development of DD strategies for individuals and the community at large. Scientists should include community partners in the development of DD strategies to enhance translation of the research findings and support the right of study participants to know their individual results.
联邦资助机构越来越支持利益相关者参与环境卫生研究，然而，关于社区成员参与数据披露（DD）策略制定的已发表研究却非常少。俄亥俄州环境保护局报告称，俄亥俄州东利物浦空气中的锰（Mn）浓度比参考浓度高30倍，这促使学术界与社区建立研究伙伴关系，以解决社区对锰暴露的担忧，尤其是儿童中的锰暴露问题。招募了儿童及其家庭参与一项试点研究。采集了儿童的血液和头发样本并进行金属分析。通过社区和学术伙伴之间的迭代方法制定了数据披露机制。向每个参与家庭邮寄了个人数据披露信件，并召开了社区会议。会后进行了一项调查，以评估社区对数据披露策略的看法。本文的目的是证明让社区伙伴参与环境卫生研究以及为个人和整个社区制定数据披露策略的有效性。科学家应在数据披露策略的制定过程中纳入社区伙伴，以加强研究结果的转化，并支持研究参与者了解其个人结果的权利。
