Abel Julian, Kellehear Allan
Department of Palliative Care, Weston Area Health Trust, Weston super Mare, UK.
Department of End of Life Care, University of Bradford, Bradford, UK.
BMJ Support Palliat Care. 2016 Mar;6(1):21-6. doi: 10.1136/bmjspcare-2015-001009. Epub 2016 Jan 31.
Palliative care, since its inception over 60 years ago, has set the standard of how to care for people who are dying. Key features among these standards have been the professional development of clinical specialisms such as palliative medicine and palliative nursing; the essential addition of the multidisciplinary team to these two new specialisms that included social, spiritual and allied health workers-an outgrowth of the recognition that routine work with the dying, their carers, and the bereaved required more than solely clinical skills; and the unique partnership with communities that yielded the volunteer movement within palliative care. Professional, evidence-based symptom management and the importance of supportive care in its widest possible sense were and remain the cornerstones of the modern palliative care approach. However, the majority of people with terminal illnesses do not have access to palliative care teams, whose main focus of care remains patients with cancer. In the context outlined above this paper therefore poses two key questions: how can we provide an equitable level of care for all people irrespective of diagnosis and how can we increase the range and quality of non-medical/nursing supportive care in a context of diminishing resources? We argue that an important opportunity and solution can be found by adopting the principles of a public health approach to end-of-life care.
姑息治疗自60多年前创立以来,为如何照顾临终患者树立了标准。这些标准的关键特征包括姑息医学和姑息护理等临床专科的专业发展;在这两个新专科中加入多学科团队,其中包括社会、精神和专职医疗工作者,这是因为认识到与临终患者、他们的照顾者和丧亲者的日常工作需要的不仅仅是临床技能;以及与社区建立独特的伙伴关系,这促成了姑息治疗领域的志愿者运动。专业的、基于证据的症状管理以及最广泛意义上的支持性护理的重要性过去是、现在仍然是现代姑息治疗方法的基石。然而,大多数晚期疾病患者无法获得姑息治疗团队的服务,这些团队的主要护理对象仍然是癌症患者。因此,在上述背景下,本文提出了两个关键问题:我们如何为所有患者提供公平的护理水平,无论其诊断如何?以及在资源减少的情况下,我们如何提高非医疗/护理支持性护理的范围和质量?我们认为,通过采用公共卫生方法来进行临终关怀,可以找到一个重要的机会和解决方案。