Bartfai Jansson Katrin, Anderzén-Carlsson Agneta
Author Affiliations: Oncology Clinic (Dr Jansson) and Center for Health Care Sciences (Dr Anderzén-Carlsson), Örebro University Hospital; and School of Health and Medical Sciences, Örebro University (Dr Anderzén-Carlsson), Sweden.
Cancer Nurs. 2017 Mar/Apr;40(2):94-101. doi: 10.1097/NCC.0000000000000358.
By the age of 21 years, 1 in 15 children will have had a parent with a diagnosis of cancer. A parent's cancer affects the whole family. Adolescent children of cancer patients seek information about their parents' condition and support in reciprocal relations.
The aims of this study were to explore adolescents' views on support and information when a parent has cancer and to describe the impact a parent's illness has on adolescents' everyday lives.
INTERVENTIONS/METHODS: Interviews with 11 participants, conducted individually or in a focus group, were processed using qualitative content analysis.
Participants gained understanding about their parent's illness mainly through their experience. They looked for support primarily in their own social circles and often found their needs met. Sometimes a fear of appearing vulnerable stood in the way of asking for support and left the adolescents feeling alone.
Participants dealt with the situation in ways that reflected their adolescence. They were connected to their parents emotionally, but strived for independence. The adolescents shared an ideal of handling difficulties on their own and looking after the people who were important to them.
Making parents feel more secure in supporting their adolescent child is important. The task of balancing respect for the adolescent's integrity and providing them an opportunity to let their guard down requires trust. Inviting the adolescents to the hospital gives them a chance to learn what is happening there and to get to know healthcare personnel who may be able to help them.
到21岁时，每15名儿童中就有1人的父母被诊断患有癌症。父母患癌症会影响整个家庭。癌症患者的青少年子女会寻求有关父母病情的信息，并在相互关系中寻求支持。
本研究的目的是探讨青少年对父母患癌症时支持和信息的看法，并描述父母的疾病对青少年日常生活的影响。
干预措施/方法：对11名参与者进行单独或焦点小组访谈，并采用定性内容分析法进行处理。
参与者主要通过自身经历了解父母的病情。他们主要在自己的社交圈子中寻求支持，并且常常发现自己的需求得到了满足。有时，担心显得脆弱阻碍了他们寻求支持，让青少年感到孤独。
参与者以反映其青春期的方式应对这种情况。他们在情感上与父母相连，但又努力追求独立。青少年有独自应对困难和照顾对他们重要的人的理想。
让父母在支持青少年子女时感到更安心很重要。在尊重青少年的完整性和为他们提供放松警惕机会之间取得平衡需要信任。邀请青少年到医院可以让他们有机会了解那里正在发生什么，并结识可能能够帮助他们的医护人员。
