Suppr超能文献

实施一项旨在加强和多样化对慢性病患者支持的社交网络干预措施。一项定性研究。

Implementing a social network intervention designed to enhance and diversify support for people with long-term conditions. A qualitative study.

作者信息

Kennedy Anne, Vassilev Ivaylo, James Elizabeth, Rogers Anne

机构信息

NIHR Collaboration for Leadership in Applied Health Research (CLAHRC) Wessex, Health Sciences, University of Southampton, Highfield Campus, Southampton, SO17 1BJ, UK.

出版信息

Implement Sci. 2016 Feb 29;11:27. doi: 10.1186/s13012-016-0384-8.

Abstract

BACKGROUND

For people with long-term conditions, social networks provide a potentially central means of mobilising, mediating and accessing support for health and well-being. Few interventions address the implementation of improving engagement with and through social networks. This paper describes the development and implementation of a web-based tool which comprises: network mapping, user-centred preference elicitation and need assessment and facilitated engagement with resources. The study aimed to determine whether the intervention was acceptable, implementable and acted to enhance support and to add to theory concerning social networks and engagement with resources and activities.

METHODS

A longitudinal design with 15 case studies used ethnographic methods comprising video, non-participant observation of intervention delivery and qualitative interviews (baseline, 6 and 12 months). Participants were people with type 2 diabetes living in a marginalised island community. Facilitators were local health trainers and care navigators. Analysis applied concepts concerning implementation of technology for self-management support to explain how new practices of work were operationalised and how the technology impacted on relationships fit with everyday life and allowed for visual feedback.

RESULTS

Most participants reported identifying and taking up new activities as a result of using the tool. Thematic analysis suggested that workability of the tool was predicated on disruption and reconstruction of networks, challenging/supportive facilitation and change and reflection over time concerning network support. Visualisation of the network enabled people to mobilise support and engage in new activities. The tool aligned synergistically with the facilitators' role of linking people to local resources.

CONCLUSIONS

The social network tool works through a process of initiating positive disruption of established self-management practice through mapping and reflection on personal network membership and support. This opens up possibilities for reconstructing self-management differently from current practice. Key facets of successful implementation were: the visual maps of networks and support options; facilitation characterised by a perceived lack of status difference which assisted engagement and constructive discussion of support and preferences for activities; and background work (a reliable database, tailored preferences, option reduction) for facilitator and user ease of use.

摘要

背景

对于患有长期疾病的人来说,社交网络是调动、调解并获取健康和幸福支持的潜在核心途径。很少有干预措施涉及如何改善通过社交网络并利用社交网络来促进参与的实施过程。本文描述了一种基于网络的工具的开发与实施,该工具包括:社交网络映射、以用户为中心的偏好诱导与需求评估,以及促进与资源的互动。该研究旨在确定该干预措施是否可接受、可实施,是否有助于增强支持,并丰富有关社交网络以及与资源和活动互动的理论。

方法

采用纵向设计,对15个案例进行研究,运用人种学方法,包括视频、对干预实施的非参与式观察以及定性访谈(基线、6个月和12个月)。参与者为生活在边缘化岛屿社区的2型糖尿病患者。协助者为当地的健康培训师和护理导航员。分析运用了有关自我管理支持技术实施的概念,以解释新的工作实践是如何实施的,以及该技术如何影响人际关系,使其与日常生活相契合,并实现可视化反馈。

结果

大多数参与者报告称,由于使用该工具,他们识别并参与了新的活动。主题分析表明,该工具的可行性取决于社交网络的中断与重建、具有挑战性/支持性的协助,以及随着时间推移对网络支持的改变和反思。社交网络的可视化使人们能够调动支持并参与新活动。该工具与协助者将人们与当地资源相联系的角色协同配合。

结论

社交网络工具通过对个人社交网络成员身份和支持进行映射与反思,启动对既定自我管理实践的积极干扰这一过程发挥作用。这为以不同于当前实践的方式重构自我管理开辟了可能性。成功实施的关键方面包括:社交网络和支持选项的可视化地图;协助的特点是感觉地位差异不大,这有助于参与以及对支持和活动偏好进行建设性讨论;以及为方便协助者和用户使用而进行的背景工作(可靠的数据库、量身定制的偏好、选项简化)。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验