Tiong Siaw Sze, Koh Eng-Siew, Delaney Geoffrey, Lau Annie, Adams Diana, Bell Vicki, Sapkota Pharmila, Harris Therese, Girgis Afaf, Przezdziecki Astrid, Lonergan Denise, Coiera Enrico
Cancer Therapy Centre, Liverpool and Campbelltown Hospitals, Sydney, NSW, Australia.
University of New South Wales, Sydney, NSW, Australia.
Asia Pac J Clin Oncol. 2016 Jun;12(2):181-7. doi: 10.1111/ajco.12475. Epub 2016 Mar 3.
Innovative e-health strategies are emerging, to tailor and provide convenient, systematic and high-quality survivorship care for an expanding cancer survivor population. This pilot study tests the application of an e-health platform, "Healthy.me," in a breast cancer survivor cohort at Liverpool and Macarthur Cancer Therapy Centres, New South Wales, Australia.
Fifty breast cancer patients were recruited to use the Healthy.me website, designed by the Centre of Health Informatics at the University of New South Wales, over a 4-month period. Telephone and online questionnaires were used at 1 and 4 months and a face-to-face feedback at study completion, to gather qualitative and quantitative data regarding feasibility of Healthy.me.
Healthy.me was reported to be a useful online resource by most users. Usage declined from 76% at 1 month to 48% at 4 months. Breast cancer survivors enjoyed a variety of tailored information regarding health and life-style issues. Positive aspects of Healthy.me were the convenient access to trusted information, and interaction with their peers and healthcare professionals. Barriers to usage contributing to usage decline were lack of reported patient time to re-access information, limited content updates and technical factors.
This pilot study suggested the potential of an e-health strategy such as Healthy.me in addressing the needs of a growing breast cancer survivor population. Ongoing development of a more robust e-health resource and integration with primary care models is warranted.
创新的电子健康策略正在兴起，旨在为不断扩大的癌症幸存者群体量身定制并提供便捷、系统且高质量的生存护理。这项试点研究在澳大利亚新南威尔士州利物浦和麦卡瑟癌症治疗中心的乳腺癌幸存者队列中测试了一个电子健康平台“Healthy.me”的应用。
招募了50名乳腺癌患者，在4个月的时间里使用由新南威尔士大学健康信息学中心设计的Healthy.me网站。在1个月和4个月时使用电话和在线问卷，并在研究结束时进行面对面反馈，以收集有关Healthy.me可行性的定性和定量数据。
大多数用户报告称Healthy.me是一个有用的在线资源。使用率从1个月时的76%下降到4个月时的48%。乳腺癌幸存者获得了关于健康和生活方式问题的各种定制信息。Healthy.me的积极方面是可以方便地获取可靠信息，并与同龄人及医疗专业人员进行互动。导致使用率下降的使用障碍包括患者报告的重新获取信息的时间不足、内容更新有限以及技术因素。
这项试点研究表明，像Healthy.me这样的电子健康策略在满足不断增长的乳腺癌幸存者群体需求方面具有潜力。有必要持续开发更强大的电子健康资源并与初级保健模式相结合。
