Klasnja Predrag, Kendall Logan, Pratt Wanda, Blondon Katherine
University of Michigan, Ann Arbor, MI.
University of Washington, Seattle, WA.
AMIA Annu Symp Proc. 2015 Nov 5;2015:756-65. eCollection 2015.
Diabetes management is a complex, dynamic process that is largely incumbent on patient choices and behavior. We explore how health-management needs-and the needs for technological support-change over time for individuals with diabetes. Through interviews and a focus group, we found that after initial diagnosis, individuals face acute information needs and chiefly turn to mobile applications and Internet resources to help understand the diabetes-specific factors that affect their health. Over time their focus shifts from highly regimented routines to more flexible ones that enable them to maintain a quality of life. Our results suggest that long-term engagement with health technology does not necessarily require continuous, sustained use: routine disease management could lead to a decrease in use, until a new event occurs. Our findings point to a need for tools that help patients with diabetes to effectively manage their health as their bodies, treatment and circumstances change over time.
糖尿病管理是一个复杂、动态的过程，很大程度上取决于患者的选择和行为。我们探讨了糖尿病患者的健康管理需求以及对技术支持的需求如何随时间变化。通过访谈和焦点小组，我们发现，在初次诊断后，患者面临迫切的信息需求，主要求助于移动应用程序和互联网资源，以帮助了解影响其健康的糖尿病特定因素。随着时间推移，他们的关注点从高度严格的日常安排转向更灵活的安排，以使他们能够维持生活质量。我们的研究结果表明，长期使用健康技术不一定需要持续、不间断的使用：常规疾病管理可能导致使用量减少，直到新的情况出现。我们的研究结果表明，随着患者的身体状况、治疗情况和生活环境随时间变化，需要有工具来帮助糖尿病患者有效管理他们的健康。
