Zhou Amy
UCLA, Department of Sociology, 264 Haines Hall, 375 Portola Plaza, Los Angeles, CA 90095-1551, USA.
Soc Sci Med. 2016 Jun;158:52-60. doi: 10.1016/j.socscimed.2016.04.013. Epub 2016 Apr 16.
In countries throughout sub-Saharan Africa, antiretroviral therapy is seen as the solution to not only treat existing patients, but also to prevent the future spread of HIV. New policies for the prevention of mother-to-child transmission place women on lifelong treatment as soon as they are tested HIV positive. This article looks at how women understand this prescription for lifelong treatment. Drawing on interviews with HIV-positive women in Lilongwe, Malawi (N = 65) during July-September 2014, I examine the process of making treatment decisions, and why - despite increased access - women refuse or stop treatment. Using treatment for preventative purposes transforms the experience of HIV from an acute to a chronic condition where both the symptoms of disease and the efficacy of treatment are unclear. Women look for evidence of the cost and benefit of treatment through their personal experiences with illness and drug-taking. For some women, the benefits were clearer: they interpreted past illnesses as signs of HIV infection, and felt healthier and more economically productive afterwards. For others, taking treatment sometimes led to marital problems, and side effects made them feel worse and disrupted their ability to work. While women understand the health benefits of antiretroviral therapy, taking treatment does not always make sense in their present circumstances when there are costly physical and economic repercussions. This study builds on existing sociological research on medical decision-making by situating decisions in a broader political economy of changing HIV policies, economic conditions, and everyday uncertainty.
在撒哈拉以南非洲的各个国家,抗逆转录病毒疗法不仅被视为治疗现有患者的方法,也被视为预防艾滋病毒未来传播的手段。预防母婴传播的新政策规定,女性一旦艾滋病毒检测呈阳性,就要接受终身治疗。本文探讨女性如何理解这种终身治疗的医嘱。通过对2014年7月至9月期间在马拉维利隆圭的65名艾滋病毒呈阳性的女性进行访谈,我研究了她们做出治疗决定的过程,以及尽管获得治疗的机会增加了,但女性为何拒绝或停止治疗。将治疗用于预防目的,会使艾滋病毒感染的体验从急性转变为慢性,疾病症状和治疗效果都不明确。女性通过自己患病和服药的个人经历来寻找治疗成本和收益的证据。对一些女性来说,收益更明显:她们将过去的疾病视为艾滋病毒感染的迹象,并且之后感觉更健康,在经济上更有生产力。对另一些女性来说,接受治疗有时会导致婚姻问题,而且副作用让她们感觉更糟,还影响了她们的工作能力。虽然女性理解抗逆转录病毒疗法对健康的益处,但在目前的情况下,当存在高昂的身体和经济影响时,接受治疗并不总是合理的。本研究以现有的关于医疗决策的社会学研究为基础,将决策置于不断变化的艾滋病毒政策、经济状况和日常不确定性的更广泛政治经济背景中。