Miller Andrew D, Mishra Sonali R, Kendall Logan, Haldar Shefali, Pollack Ari H, Pratt Wanda
Biomedical and Health Informatics University of Washington Seattle, WA.
The Information School University of Washington Seattle, WA.
CSCW Conf Comput Support Coop Work. 2016 Feb-Mar;2016:756-769. doi: 10.1145/2818048.2819983.
Informal caregivers, such as close friends and family, play an important role in a hospital patient's care. Although CSCW researchers have shown the potential for social computing technologies to help patients and their caregivers manage chronic conditions and support health behavior change, few studies focus on caregivers' role during a multi-day hospital stay. To explore this space, we conducted an interview and observation study of patients and caregivers in the inpatient setting. In this paper, we describe how caregivers and patients coordinate and collaborate to manage patients' care and wellbeing during a hospital stay. We define and describe five roles caregivers adopt: companion, assistant, representative, navigator, and planner, and show how patients and caregivers negotiate these roles and responsibilities throughout a hospital stay. Finally, we identify key design considerations for technology to support patients and caregivers during a hospital stay.
非正式护理人员，如亲密朋友和家人，在医院患者的护理中发挥着重要作用。尽管计算机支持的协同工作（CSCW）研究人员已经表明，社交计算技术有潜力帮助患者及其护理人员管理慢性病并支持健康行为改变，但很少有研究关注护理人员在患者多日住院期间的作用。为了探索这一领域，我们对住院环境中的患者和护理人员进行了访谈和观察研究。在本文中，我们描述了护理人员和患者如何在住院期间协调与合作，以管理患者的护理和健康状况。我们定义并描述了护理人员所扮演的五个角色：陪伴者、助手、代表、导航员和规划者，并展示了患者和护理人员在整个住院期间如何协商这些角色和职责。最后，我们确定了在住院期间支持患者和护理人员的技术的关键设计考虑因素。
