Gunnery Sarah D, Habermann Barbara, Saint-Hilaire Marie, Thomas Cathi A, Tickle-Degnen Linda
Department of Occupational Therapy, Tufts University, Medford, MA, USA.
School of Nursing, University of Delaware, Newark, DE, USA.
J Parkinsons Dis. 2016 Jun 3;6(3):625-30. doi: 10.3233/JPD-160782.
Though hypomimia, also called facial masking, is experienced by many people with Parkinson's disease (PD), little is known about how the experience of this motor impairment relates to their own and their care partners' (CP) social life and relationship quality.
To test if the experience of facial masking relates to social wellbeing in people with PD and their CPs.
Forty individuals with PD and their CPs rated PD's difficulty showing facial expression (facial masking), and completed questionnaires about their own social wellbeing and depression.
PD-reported and CP-reported facial masking of PD were positively correlated with experience of social rejection in both partners, though this relationship was diminished when controlling for depression. CPs' rating of their partner's facial masking was negatively associated with enjoyment interacting with their partner. This relationship remained when controlling for CP and PD depression.
The findings suggest that the experience of facial masking is negatively associated with social wellbeing particularly for the CPs, and especially so for the quality of CPs interpersonal relationship with their partner with PD.
尽管许多帕金森病(PD)患者会出现面无表情,也称为面部面具脸,但对于这种运动障碍的体验如何与他们自己及其护理伙伴(CP)的社交生活和关系质量相关,人们知之甚少。
测试面部面具脸的体验是否与PD患者及其CP的社会幸福感相关。
40名PD患者及其CP对PD患者面部表情表现困难(面部面具脸)进行评分,并完成关于他们自己的社会幸福感和抑郁的问卷调查。
PD患者自我报告和CP报告的PD患者面部面具脸与双方的社会排斥体验呈正相关,尽管在控制抑郁后这种关系减弱。CP对其伴侣面部面具脸的评分与与伴侣互动的愉悦感呈负相关。在控制CP和PD患者的抑郁后,这种关系仍然存在。
研究结果表明,面部面具脸的体验与社会幸福感呈负相关,尤其是对CP而言,对于CP与PD伴侣的人际关系质量更是如此。